We are excited to offer a special webinar Thursday, August 26, 2021 at 8:00 p.m. EST on becoming an advocate for PWSA | USA.
Advocacy is not just for lobbyists: Anybody can be an effective advocate. Join PWSA | USA and learn how you can help bring PWS awareness to states throughout the country. At PWSA | USA we understand that State and Federal governmentโs both play a unique and irreplaceable role in supporting these efforts. Join our team of advocates and learn how you can help!
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Dorothea Lantz
Dorothea Lantz is the Community Engagement Specialist for PWSA | USA, a licensed Real Estate Broker with ONE Sothebyโs International Realty and a lifetime resident of Miami, Florida. In July of 2017, she and her husband and were blessed with their son, Hunter, who was diagnosed with PWS at 16 days old. Dorothea has an extensive background in public service, government administration and is a contributing member of the South Florida and PWS community. She has been a Parent Mentor with PWSA | USA since 2019. In addition, Dorothea is an appointed member of the City of South Miami Environmental Review and Preservation Board and a Mentor with the ACE Foundation Women's Leadership Institute.
Perry A. Zirkel has written more than 1,500 publications on variousย aspects of school law, with an emphasis on legal issues in special education.ย He writes a regular column for NAESPโsย Principalย magazine and NASPโsย Communiquรฉย newsletter, and he did so previously forย Phi Delta Kappanย andย Teaching Exceptional Children.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Childrenโs Institute of Pittsburgh. She graduated fromย Duquesne University receiving her Bachelorโs and Masterโs degree in Education with a focus on elementary education, special education, and language arts.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Programย (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Childrenโs Hospital in Denverย supporting families and school districts around the United Statesย with their childโs Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.