submitted by Stacy Ward
This spotlight is in recognition of Diane Larsen, mom to Carrie Ilijevich (Director of Marketing/Communications at PWSA | USA.) Diane has volunteered countless hours for PWSA | USA’s convention in 2023 and the most recent United In Hope International PWS Conference.
Although Diane has no personal connection to the Prader-Willi syndrome community beyond her daughter, Carrie Ilijevich, who works for PWSA | USA, she went above and beyond in her support of our mission at the United in Hope Conference. Diane generously volunteered her time throughout the entire event—welcoming attendees at the check-in desk, capturing photos, distributing signs across the resort, and helping stuff every swag bag with care. Her energy, kindness, and willingness to step in wherever needed made a meaningful difference. We are incredibly grateful for Diane’s contributions and her spirit of service, which helped make the conference a warm and welcoming experience for all.
Diane truly deserves the spotlight for her selfless dedication and behind-the-scenes efforts that often go unnoticed but are absolutely essential to the success of an event like ours. Despite not being directly connected to the PWS community, she embraced the mission with heart and purpose, working tirelessly to ensure every detail was handled with care. Her presence embodied the spirit of compassion and community that defines PWSA | USA. By stepping up in such a meaningful way, Diane not only supported her daughter’s work but also became an important part of our extended family—and for that, we are honored to recognize her.
Submit a Volunteer Spotlight
Volunteers are a critical part of the work we do at PWSA | USA! We are incredibly grateful and inspired by the people who step up and offer their time, energy, wisdom, and support to help the families and individuals in the PWS community. We welcome submissions from people spotlighting someone else, or from volunteers themselves!
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Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.