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two photos of woman at a table and at a registration desk for the United In Hope PWS (prader-willi syndrome) conference

Volunteer Spotlight: Pillar of Strength, Support, and Hope

submitted by Stacy Ward

Sybil Cohen has been a dedicated volunteer for PWSA | USA for many years, serving in numerous vital roles including chapter leader, board member, and parent mentor.

Her unwavering commitment was especially evident at the recent United in Hope Conference, where she volunteered at the registration and check-in desk for the entirety of the event. From early morning through the final session, Sybil greeted every attendee with warmth and kindness, offering not only name badges and materials but also reassurance and a friendly smile. Whether she was answering questions, helping families navigate the venue, or simply being a calm and welcoming presence, Sybil made everyone feel seen and supported. Her dedication, approachability, and deep compassion are a true reflection of the spirit of the PWSA | USA community.

We are deeply grateful to Sybil for her tireless dedication and the countless hours she has devoted to the PWSA | USA community. Her presence at the United in Hope Conference exemplified the heart of volunteerism, offering her time, energy, and compassion without hesitation. Sybil’s efforts did not go unnoticed; countless families, new and returning, commented on how her kindness made their experience more welcoming and meaningful. We extend our heartfelt thanks to Sybil for being a pillar of strength, support, and hope. Her ongoing service continues to make a lasting impact, and we are honored to have her as part of the PWSA | USA family.

Submit a Volunteer Spotlight

Volunteers are a critical part of the work we do at PWSA | USA! We are incredibly grateful and inspired by the people who step up and offer their time, energy, wisdom, and support to help the families and individuals in the PWS community. We welcome submissions from people spotlighting someone else, or from volunteers themselves!

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