PWS Mom Jamie Caldwell, has found a unique way to celebrate her daughter, Lydia (3, living with PWS) and PWS Awareness Month.
“We started working with this project after Kristina (Rieger), owner/founder of Dalya’s Dreamers, had posted in our local special needs mom group seeking models of her dresses. As a mother with a daughter living with a different rare disease, Kristina started her business to not only support her family during a time she wasn’t able to work as much due to her daughter’s medical complexities, but also to bring awareness, inclusion, and confidence to other families via fashion and clothing. The families that participated in the photo sessions were able to choose a foundation or organization that 10% of the sales of all items would be donated to. In addition, Lydia and I were able to design a dress that we felt best represented her but also other children living with PWS. All proceeds from this specific dress design will go to PWSA.” – Jamie Caldwell
What is Dalyas Dreamers?
Dalyas Dreamers is a “program designed to promote inclusivity, bring awareness to the families of children with special needs and their incredible journeys, and to support the organizations that serve these families.” Through this business, families can design an outfit based on their loved one’s personality, participate in a photo session with Megan Grace Photographs, and help financially support an organization of their choice. You can support Dalyas Dreamers and PWSA | USA by shopping at Dalyas – Childrens Clothing Boutique
Kristina and Jamie worked together on an article about Lydia and her family’s PWS journey. You can read this article at The Dream Team – Dalyas
Photography Credit
The above photos were taken by Megan Otey with Megan Grace Photographs. Her email address is megangracephotographs@gmail.com
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Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.