Make your voice heard…STAT! The EveryLife Foundation for Rare Diseases is seeking advocates to share quotes, photos, and/or videos to express their support the Speeding Therapy Access Today Act, or STAT Act. Advocates are encouraged to share how their specific rare disease journey will be positively impacted by a specific aspect of the STAT Act.
Please send a 1-2 sentence quote and photo and/or video (no longer than 60 seconds) to Dorothea Lantz, PWSA | USA’s Community Engagement Specialist, at Advocacy@pwsausa.org as soon as possible. Your quote, photo and/or video will be shared on Everylife’s and PWSA | USA’s social media and website and in presentations and communications to stakeholders and policymakers.