Celebrating our Journey of Hope! Join us as we usher in PWSA | USAโ€™s 50thย Anniversary. Learn More

PWSA Blog

Show Your Support for the STAT Act!

Make your voice heardโ€ฆSTAT! The EveryLife Foundation for Rare Diseases is seeking advocates to share quotes, photos, and/or videos to express their support theย Speeding Therapy Access Today Act, or STAT Act. Advocates are encouraged to share how their specific rare disease journey will be positively impacted by a specific aspect of the STAT Act.

Please send a 1-2 sentence quote and photo and/or video (no longer than 60 seconds) to Dorothea Lantz, PWSA | USAโ€™s Community Engagement Specialist, at Advocacy@pwsausa.org as soon as possible.ย Your quote, photo and/or video will be shared on Everylifeโ€™s and PWSA | USAโ€™s social media and website and in presentations and communications to stakeholders and policymakers.

Share this!

Scroll to top