International Prader-Willi Syndrome Organisation (IPWSO)


IPWSO is the international non-profit support group for all countries where there is even just one person with Prader-Willi syndrome. Their international umbrella supports PWS Associations in every country, and for countries where there are no formal PWS Associations, they support medical and parent delegates as part of PWS community.  IPWSO has 105 country members, and is a world-wide parent-led support organisation.  IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.