We are thrilled to share that PWSA | USA has partnered with Soleno Therapeutics on an exciting new awareness initiative that will be featured during this year’s Super Bowl – an ad in the Super Bowl printed program! The powerful message — “No end zone. No final whistle. Just goal posts that keep moving.” — brings national attention to the realities of Prader-Willi syndrome, including the relentless challenges of hyperphagia and the constant drive for food experienced by so many in our community.
This collaboration reflects our shared commitment to elevating the voices of individuals and families living with PWS, increasing public understanding, and pushing forward the visibility and advocacy this community deserves. We are deeply grateful to Soleno for helping bring PWS to one of the largest stages in the world.
Below is a preview image of the print ad that will be featured. A link to download the ad for free will be available one week prior to the Super Bowl.
Together, we are moving the goal posts toward greater awareness, stronger advocacy, and a future filled with possibility for every individual living with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.