12 events found.
-
-
-
-
First-Time Attendee Info Session: What to Expect at the 2025 International PWS Conference
When: Wednesday, June 4, 2025 | 12:00 PM ET / 9:00 AM PT Where: Online via ZOOM Is this your first time attending a PWS Conference? Wondering how the Family Program works or what exciting events are planned? We’ve got you covered! Join Kristi Rickenbach, PWSA | USA Parent Support Coordinator, and Stacy Ward, PWSA […]
-
2025 United In Hope: International Prader-Willi Syndrome Conference
PWSA | USA is pleased to announce a new partnership with the Foundation for Prader-Willi Research (FPWR) and the International Prader-Willi Syndrome Organisation (IPWSO) to host United in Hope – an International PWS Conference to be held June 24-28, 2025 at the Arizona Grand Resort and Spa in Phoenix, Arizona! The conference theme, “United in Hope” reflects […]
-
-
TEMPO PWS Clinical Trial Webinar with Harmony Biosciences
Hear New Details About the TEMPO Clinical TrialTuesday, August 19, 2025 | 8:00 p.m. EST / 5:00 p.m. PSTHosted by PWSA | USA, Free Virtual Webinar via Zoom REGISTER HERE Join PWSA | USA and representatives from Harmony Biosciences in an upcoming free webinar to hear new information about the TEMPO PWS Clinical Trial. This […]
-
-
4th Annual No Gimmes For Jimmy Charity Golf Outing
Heron Glen Golf Course 110 State Highway 202 & 31, Ringoes, NJ, United StatesTo Register as a GOLFER or a TEAM click here Join us for a day on the links on Saturday, September 6, 2025 at Heron Glen Golf Course in Ringoes, NJ in remembrance of Jim Worthington. A portion of the proceeds will be donated to PWSA, in Jim's name. This event is inclusive for golfers […]
-
16th Annual Hunter Lens Golf Tournament
Heritage Hills Golf Club 17 Heritage Hill Drive, Lakeville, MA, United StatesLEARN MORE AND REGISTER TO ATTEND HERE When: Saturday, September 13, 2025 | 1:00 PM ET Where: Heritage Hills Golf Club, 17 Heritage Hill Drive, Lakeville, MA Join the Lens family for a day of golf, good spirits, and great friends as you golf and dine at Heritage Hills Golf Club in Lakeville, MA. This […]
-
PWSA | USA’s 50th Anniversary Celebration: Journey of Hope Gala
The Ritz-Carlton, St. Louis 100 Carondelet Plaza, St. Louis, MO, United States50th Anniversary Celebration: Journey of Hope Gala CLICK HERE TO PURCHASE TICKETS Join PWSA | USA as we celebrate 50 years of support, research, and community at our Journey of Hope Gala. Date: Friday, September 26, 2025, from 6 PM - 10 PM Location: Ritz Carlton, St. Louis, MO Together, we will reflect on the […]
-
-
2nd Annual Dance Silly for Prader-Willi
Trumbull Career & Technical Center 528 Educational Hwy NW, Warren, OH, United StatesCLICK HERE TO PURCHASE TICKETS AND LEARN MORE Join us for the 2nd annual Dance Silly for Prader-Willi event—a lively celebration to support the Prader-Willi Syndrome Association USA! This special occasion honors our daughter Jayda’s journey with PWS and the invaluable support we’ve received from this incredible organization. Get ready for a FUN, FAMILY, DANCE PARTY like no other! Set […]
-
Cocktails for a Cause
The Malt Room at Brown's Brewery 417 River Street, Troy, NY, United StatesCLICK HERE TO PURCHASE TICKETS AND LEARN MORE Join us for an unforgettable evening of support, hope, and community. Hosted at the scenic and historic Brown’s Brewing Company Malt Room, this event will bring together families, friends, and supporters for an inspiring evening of cocktails, conversation, and compassion, all aimed at raising awareness and funds […]
-
Answers for Audrey 2025
Incarnate Word Academy 2788 Normandy Ave., St. Louis, MO, United StatesWe’re thrilled to invite you to an evening of fun, community, and purpose at the 5th Annual Answers for Audrey Trivia Night. Can you believe it’s already Year 5? Our daughter, Audrey Rose, was diagnosed with Prader-Willi Syndrome (PWS) on December 19, 2020. PWS is a rare genetic disorder caused by a missing segment on chromosome 15, affecting approximately 1 in 25,000 […]
-
Prader-Silly: A Night of Rare Laughs
Zanies Comedy Night Club Nashville 2025 8th Ave S, Nashville, TN, United StatesCLICK HERE TO LEARN MORE AND PURCHASE TICKETS! When: Wednesday, October 22, 2025 Doors open at 5:00 PM | Show starts at 7:30 PM Where: Zanies Comedy Club Nashville (2025 8th Ave S, Nashville, TN 37204) Hey Nashville! it’s time to laugh in rare form. On Wednesday, October 22, 2025, the iconic Zanies Comedy Club […]
-
-
A Bow for Áine Mirella: Performance for PWS
Main Line Unitarian Church 816 South Valley Forge Road, Devon, PA, United StatesVISIT EVENT PAGE The name of this event is inspired by Áine's frequent wearing of a myriad of adorable bows but is also about taking a bow, as this is a concert fundraiser. Irene Moretto ("Mamma" of Áine) and Kaitlyn Waterson will perform musical selections for piano and voice centered around the wondrous and awe-filled experiences of infancy, childhood, […]
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.