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Country for a Cure

Marjorie Park @ Fiddler’s Green Amphitheatre 6331 S Fiddlers Green Cir, Greenwood Village, CO, United States

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Rare(ly) Missed Opportunities: Your PWS Financial Guide

Join us to learn about PWSA | USA's newest initiative "Rare(ly) Missed Opportunities: Your PWS Financial Guide." During this interactive webinar, we will walk you through navigating our newest web based resource to find waivers in your state, financial literacy webinars and downloadable documents. REGISTER IN ADVANCE HERE

2023 Advocacy in Action Kick-Off Webinar

2022 was a groundbreaking year for PWSA | USA's Advocacy efforts and it was thanks to you, our amazing community and volunteers. As we step into a new year, we are excited to share more advocacy opportunities on the horizon. Please join us Tuesday, January 17, 2023 at 8:00 p.m. EST with PWSA | USA […]

PWSA | USA Behavior Summit

There's still time to register for PWSA | USA's first-ever Behavior Summit, which will be held Tuesday, January 24, 2023 from 2:00 - 7:45 p.m. EST! The Summit will include several webinar presentations from specialists who are experts in behavior issues, and is for both parents and healthcare providers. During this FREE virtual event, you […]

2023 Clint Hurdle Hot Stove Dinner

Anna Maria Island FL, United States

PURCHASE YOUR TICKET TO THE 9TH ANNUAL CLINT HURDLE HOT STOVE DINNER HERE Get ready for some fun in the sun! For those interested in attending the 2023 Clint Hurdle Hot Stove Dinner, you can now make your hotel reservations in our room block HERE. The event will be held Saturday, March 25, 2023 at […]

PWS Jeopardy!

When: Monday, May 15, 2023 | Games at 7:30 pm EST and 9:00 pm EST Where: Zoom Cost: Free! To celebrate and raise awareness for PWS Awareness Month, bring your family, friends, and brain power for a fun night of PWS Jeopardy. FREE for all to attend! REGISTER BELOW: Click Here to register to attend […]

PWSA | USA 2023 National Convention

We invite you to join us June 21 – June 24, 2023, in sunny Orlando, Florida at the Hilton Orlando Buena Vista Palace. PWSA | USA’s Convention will provide exciting opportunities to learn, connect (and reconnect), and hear about the latest PWS research. Taking place in Orlando, FL on June 21-24, 2023, this world-class event will […]

FDA Externally-Led Patient-Focused Drug Development Meeting

Hilton Orlando Buena Vista Palace 1900 East Buena Vista Drive, Lake Buena Vista, Florida, United States

Your Voice Will Make a Difference! Prader-Willi Syndrome’s First Externally Led Patient-Focused Drug Development Meeting will take place June 22, 2023 from 12:00 - 4:30pm EST both Virtually Via Zoom and In-Person at the Hilton Orlando Buena Vista Palace. CLICK HERE TO REGISTER TO ATTEND THE EL-PFDD MEETING VIRTUALLY The Prader-Willi Syndrome community is invited […]

Siblings Community Conversation

Siblings of loved ones living with PWS are invited to join PWSA | USA for our next Siblings Community Conversation on July 12, 2023, at 2:00 p.m. EST. These sibling community conversation webinars will take place the 2nd Wednesday of every month. This discussion provides a safe space for dialogue between siblings of a person […]

August Siblings Community Conversation

Siblings of loved ones living with PWS are invited to join PWSA | USA for our next Siblings Community Conversation on August 9, 2023, at 8:00 p.m. EST. These sibling community conversation webinars will take place the 2nd Wednesday of every month. This discussion provides a safe space for dialogue between siblings of a person […]

ECHO 4 PWS – Endocrinology 101

Register TODAY for PWSA | USA's next Healthcare Provider Project ECHO Series webinar, Endocrinology 101, which will be held Tuesday, September 26, 2023 at 6:00 p.m. EST. We are proud to offer this FREE opportunity to healthcare professionals who work with patients affected by Prader-Willi syndrome (PWS) or are interested in learning more about PWS, and to […]

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