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Prader-Willi California Foundation to match gifts for Oxytocin study!

$20,000 In 20 Days for Oxytocin Research! Thanks to the generosity of the Prader-Willi California Foundation (PWCF) a $10,000 matching grant has been announced for the Oxytocin phase 2 study, led by Dr. Jennifer Miller. PWCF will donate $10,000 if PWSA (USA) can raise $10,000 over the next 20 days. So for the next twenty days we have […]

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Noninvasive Prenatal Screening – Testing Now Available For PWS

Janalee Heinemann, PWSA (USA) Coordinator of Research and International Affairs Noninvasive prenatal screening (NIPS) – also called noninvasive prenatal testing (NIPT) or cell–free DNA testing – is now available for Prader-Willi syndrome (PWS). Testing can be done any time after 9-10 weeks gestation because DNA from the fetus circulates in maternal blood. The testing is […]

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PWSA (USA) Joseph McErlane Research Grant

  PWSA (USA) is sponsoring a grant that will bring therapy to the home! PWSA (USA) Joseph McErlane Research Grant Project Title: Evaluating the Feasibility of a Telehealth Intervention of Early Social Cognitive Processes in Children with Prader-Willi syndrome Principal Investigator: Anastasia Dimitropoulos, Associate Professor of Psychology, Ph.D. Case Western Reserve University, Cleveland, OH   […]

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Oxytocin Phase 2 Study Campaign Reaches Milestone!

In our first month of the Oxytocin campaign, we have exceeded $160,000! The PWSA (USA) Board matching gift fund of $50,000 was exhausted in less than a week! Thank you for your generosity and support for this study. To help us reach our next milestone in this potentially life-changing research study, please donate or register […]

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Exciting News: $50,000 Matching Gift Grant for the Oxytocin Phase 2 Study!

The PWSA (USA) Executive Committee of the Board has announced a $50,000 matching gift grant to initiate fundraising efforts for this potentially life-changing research study for our children and our families. Any donations made between now and August 31st will be matched dollar for dollar up to a total of $50,000! Click Here to make your donation today! You […]

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Prader-Willi syndrome: a review of clinical, genetic, and endocrine findings

We are pleased to share the following new publication which was written by three of our PWSA (USA) Advisory Board members: Prader-Willi syndrome: a review of clinical, genetic, and endocrine findings M. A. Angulo, M. G. Butler &M. E. Cataletto Journal of Endocrinological Investigation (Springer) Click HERE to read the publication

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PWSA (USA) Saving Lives in the ER

One of our goals for 2015 is to focus on ways to have more impact with ER situations. We all know that taking a child or an adult with Prader-Willi syndrome to the ER can in and of itself be life-threatening. I certainly know this through my experience of covering most medical crises for over […]

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