PWSA Blog

Harmony Biosciences Encouraged by New Data in Pitolisant Phase 2 Study

This morning, PWSA | USA received new information from Harmony Biosciences regarding its Phase 2 study of pitolisant. This study's purpose is to evaluate the safety and efficacy of the drug in patients with Prader-Willi syndrome (PWS). The company shared the following community-facing statement: "Today, Harmony Biosciences announced topline data on the primary outcome, excessive...

Celebrate Thanksgiving Safely

by Katherine Crawford, former PWCF Family Support Coordinator Updated by Lisa Graziano, M.A., PWCF Education and Training Consultant Holidays are a time for gathering, connecting, and celebrating – but are also typically centered on food, which often places enormous stressors on families of a child or adult with PWS. We hope the following tips make...

Healthy Holiday Recipes

Silly Apple Monsters Ingredients: 3 green apples 3 tablespoons creamy peanut butter 2 ounces of sliced cheese (cheddar or colby jack both work) 2 tablespoons of pumpkin or sunflower seeds A package of candy eyes Instructions: Quarter the green apples and slice off the core and seeds. Carefully cut out a v-shape into the center...

Halloween Fun for Everyone

Children, and many adults, look forward to Halloween with great anticipation. Bags full of sugary treats, scary decorations, and the thrill of trick or treating with friends and family: what could be more fun? But what do you do for Halloween when your loved one has Prader-Willi syndrome? Can they safely participate in the festivities?...

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