PWSA | USA's Advocacy Guide

For more information on how to be an effective advocate download this advocacy toolkit created by Patients Rising with our Community Engagement Specialist, Dorothea Lantz, as a contributing member

Download Toolkit

 

LIGHT UP THE WORLD FOR
RARE DISEASE DAY®


Register now to join The EveryLife Foundation and RDLA at their Virtual Rare Disease Week on Capitol Hill 2022 February 22nd – March 2nd

FPWR

Click the link below to download the comprehensive joint response from PWSA | USA and FPWR. We will continue to keep you informed of any developments as we move forward in this process together

Click here to download the report.