Abbott Philson is 41 years old and lives with Prader-Willi syndrome. He lives in Maine and has been a board member for PWSA | USA for 25 years. In an effort to learn more about our adults with PWS, and to shine a light on their lives and experiences, we asked our Advisory Board members some questions. Below are Abbott’s responses.
What is something you are really good at?
leadership, advocating, jigsaw puzzles, crossword puzzles, team player
What are some activities you like to do?
sailing, self advocacy, art, para-dressage, singing, acting
What makes you happy? What makes you laugh or smile?
being me and being loved
What is something that makes you interesting?
high functioning
Why should people learn about PWS?
to keep us healthy and safe so we can lead normal lives as much as we can.
What is one thing people should know about PWS?
food control
Is there something about PWS that people don’t understand?
behavior
In what way does PWS challenge you?
emotions and food seeking
How does PWS make you special?
It brings out a better understanding of other people’s difficulties.
Is there something you would say to parents of newly diagnosed individuals with PWS?
There is hope and a well-controlled diet and environment will make your child successful.
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