Today, May 15th, our PWS community has something new to celebrate!
PWSA | USA is excited to announce U.S. Congressman Paul D. Tonko (D-NY) and Congresswoman Maria Elvira Salazar (R-FL) have filed a joint resolution declaring May 15, 2023, and every May 15th thereafter, Prader-Willi Syndrome (PWS) Awareness Day in the United States of America!
Thank you to our advocates, especially those who shared our PWS Awareness Day ask on Capitol Hill last September, for working hard to make this milestone happen. We are hopeful this additional spotlight on our rare disease community will help further and open new doors for the advancement of treatments. Watch our PWS Awareness Day announcement video below, featuring Congressman Tonko and CEO Paige Rivard.