Note: This event is hosted by Soleno Therapeutics and shared by PWSA | USA as an educational opportunity for the Prader-Willi syndrome (PWS) community.
Families, caregivers, and professionals are invited to join Soleno Therapeutics for an upcoming educational webinar discussing Prader-Willi syndrome and VYKAT™ XR (diazoxide choline), a treatment for individuals 4 years and older with hyperphagia in PWS.
Date: Monday, November 3, 2025
Time: 7:30 – 8:30 PM ET
Registration: Click here to RSVP
This live webinar will include a review of the signs and symptoms of hyperphagia in Prader-Willi syndrome, what VYKAT XR offers as a treatment option, and how to get started with the medication. Attendees will also hear directly from an individual living with PWS who will share their personal experience.
Featured Speakers
– Parisa Salehi, MD – Pediatric Endocrinologist, Alaska Subspecialty Pediatric Network (ASPN), Southcentral Foundation; Clinical Associate Professor, University of Washington, Department of Pediatrics
– Elisa Herrera – National Director, PACE; Director, Residential Stakeholders, Soleno Therapeutics
– Finn – Individual living with Prader-Willi syndrome
– Shelley Doran – Patient and Community Educator, Soleno Therapeutics
– Brennen Fields – Sr. Director, Patient Access Solutions, Soleno Therapeutics
Discussion Topics
– Recognizing the signs and symptoms of hyperphagia in PWS
– Understanding what VYKAT XR offers as a treatment for hyperphagia in PWS
– Hearing one family’s story and lived experience
– How to get started with VYKAT XR and available support resources
This FREE one-hour session offers an opportunity to learn, ask questions, and connect with others who understand the unique challenges of Prader-Willi syndrome.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.