Contributed by PWSA | USA CEO Stacy Ward, MS, BCBA

When you are raising or caring for someone with PWS the journey can feel overwhelming. What makes it a little lighter is knowing there are incredible clinicians, researchers, and specialists who have chosen to walk this road with us.

At the heart of PWSA | USA’s mission stands a remarkable group of clinicians and scientists who have dedicated their careers to caring for individuals with Prader-Willi syndrome. These individuals are more than medical experts – they are trusted partners.

Their expertise has shaped the standards of care in the PWS community, guiding families and providers with clarity, compassion, and a steadfast commitment to improving lives. Each member, current and past, of our Clinical & Scientific Advisory Board (CSAB) brings not only knowledge, but also decades of experience in listening, learning, and advocating for individuals with PWS.

In addition to their clinical care and advisory work, many of the clinicians in the PWS community also serve as primary investigators on clinical trials. This role requires an extraordinary level of commitment – countless additional hours spent overseeing trial operations, analyzing data, and navigating the complex regulatory landscape. Their willingness to take on this demanding work speaks to their dedication not only to science but also to families and individuals living with PWS. Every study they lead brings us closer to treatments and interventions that can change lives, and the sacrifices they make to advance these trials demonstrate a remarkable devotion to driving progress for the PWS community.

The following clinicians and scientists have devoted their careers to advancing care, research, and support for the PWS community while strengthening the mission of PWSA | USA.

Jennifer Miller, MD – Endocrinologist

Deepan Singh, MD, FAPA- Psychiatrist

Ann Scheimann, MD, MBA – Gastroenterologist

David Agarwal, MD – Vascular and Interventional Radiologist

Jessica Duis, MD, MSc – Pediatric Geneticist / Special Care Pediatrician

Jan Forster, MD – Psychiatrist

Moris Angulo, MD – Endocrinologist / Geneticist

Ann Manzardo, PhD, MS – Behavioral Pharmacologist

Merlin G. Butler, MD, PhD, FFACMG – Geneticist / Cytogeneticist

Greg Cherpes, MD – Psychiatrist

Dan Driscoll, MD, PhD – Geneticist

Linda Gourash, MD – Pediatrician

Janet Li, MD – Urogynecology

James Loker, MD – Pediatric Cardiologist

Shawn McCandless, MD – Geneticist

Matt Rivard, MD, MBA, FACS – General Surgeon

Harold van Bosse, MD, FAAOS – Orthopedic Surgeon

Amee Revana, DO, FAASM – Pediatrician / Pulmonologist

Daniela Rubin, PhD, FACSM – Exercise Physiology Scientist

Parisa Salehi, MD – Endocrinologist

Althea Shelton, MD, MPH – Neurologist

Olivia Veatch, PHD – Assistant Professor

Barbara Whitman, PhD – Professor of Pediatrics

Waheeda Hossain, MD, MPH – Psychiatry and Behavioral Sciences

Karen Vogt, MD – Endocrinologist

Mary Cataletto, MD – Pulmonologist

Anastasia Dimtropoulos, Phd – Professor of Psychology

Andrea Haqq, MD, MHS, FRCP ( C ), FAAP – Endocrinologist

Susan Meyers, MD – Endocrinology

Robert Nicholls, DPhil – Professor of Genetics

Stefan Stamm, PhD – Professor

Joseph Donnelly, EdD, MS – Professor, Physical Activity & Weight Management

Roxanne Gross, CCC-SLP – Assistant Professor

Todd Porter, MD, MSPH – Pediatrician

What makes their impact truly special isn’t just the science they move forward, but the trust they’ve earned along the way. Families across the country know they can count on these clinicians for answers, guidance, and real support. Their dedication has helped build a sense of confidence and comfort that continues to hold the PWS community together.

We’re incredibly thankful for the time and energy these clinicians and researchers pour into their work, whether they’re in a lab, a clinic, a hospital, or sitting with a family, helping them navigate the unknown. Thanks to their commitment, progress isn’t just a goal. It’s something we see happening every day.

As we recognize their work, we’re celebrating more than just their professional achievements. We’re honoring the kindness, generosity, and heart they bring to everything they do. Their dedication has shaped the future of PWS care, and their impact will continue to inspire hope for years to come.