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Thank you to everyone who attended this year's Virtual National Convention! Session Recordings are NOW AVAILABLE. Click here to watch.
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Latest News
Forces of Nature, A PWS Book Review
Book reviewed by Lisa Graziano, M.A., LMFT, PWS parent and long-time advocate Forces of Nature: A Memoir of Family, Loss, and Finding HomeWritten by Gina DeMillo WagnerI recently stumbled across this book and purchased it after learning it was written by a woman whosebrother had Prader-Willi syndrome. Amazonโs description reads, โGina DeMillo Wagner’s brother Alan...
Ask Nurse Lynn: Aging in PWS
Question: Female, 62 years old, unknown subtype My sister has PWS. We live in Quebec Canada. There is so little information about how people with PWS age. We have reduced her meds recently due to aging (Bupropion by half and she is now taking Lorazepam to handle side effects). She takes medicine due to pre-diabetes....
FDA Priority Review of DCCR for PWS: Latest Update and What It Means
On October 8, 2024, Soleno Therapeutics provided a regulatory update onย DCCR (Diazoxide Choline Controlled-Release)ย tablets, which are currently undergoingย priority review by the FDAย as a potential treatment for hyperphagia in individuals with Prader-Willi syndrome (PWS). Although the FDA has moved forward with priority review, it has chosen not to hold anย advisory committee meetingย at this time. We have...