Events and Fundraisers
Thank you to everyone who attended this year's Virtual National Convention! Session Recordings are NOW AVAILABLE. Click here to watch.
Reserve your stay TODAY at Compass by Margaritaville, Anna Maria Island, FL *Limited number of rooms available
Latest News
Home Schooling: How Do I Get Services for My Child? (Part 3 in a Series)
Appropriate services for our children is always a top concern and school-aged children typically get most of their services through the school. So naturally when considering homeschooling, you’ll want to know what your options are for services. Generally speaking, there are four possible avenues for therapy services: Your local school district, your state’s department of...
Update on Later Stage Clinical Trials for Prader-Willi Syndrome Hyperphagia
Approximately two years ago, several companies began clinical trials of drugs with the potential to treat hyperphagia and associated behaviors in Prader Willi syndrome (PWS). Outcomes of four of five trials are now available. Soleno Therapeutics recently announced the results of clinical trials of DCCR. In the double-blind study, caregivers were asked to rate the...
Home Schooling: But I’m Not a Teacher, How Can I Teach My Children? (Part 2 In a Series)
Did you used to be a teacher? You must need special qualifications to home school, right? Variations of this question come up frequently when I tell people I home school. The truth though is that no, I was not a teacher, and though I do have a graduate degree, I don’t have any special training...