Introducing PWSA | USA’s “Walk a Mile in their Genes” advocacy campaign! Participants will not only raise awareness about PWS, but they will raise much needed funds to enable PWSA | USA to continue to provide the services our community needs. This virtual/in-person fitness challenge is open to all ages and fitness levels to promote health and wellness, while supporting the Prader-Willi community. You can sign up as a Walk a Mile in their Genes participant or make donations through March 19, 2023, at the button below. Thank you for taking action!

How Do You Share Your Rare?

Tuesday, February 28, 2023 is nationally recognized as Rare Disease Day! We are asking our PWS community to share how you "wear your rare." This can simply be sharing your PWS journey, a quote that inspires you, or a picture of you and your loved one! Thank you for helping us shine a light on Rare Disease Day.

RARE DISEASE DAY FAQS