Share Your Rare Story

Tuesday, February 28, 2023 is nationally recognized as Rare Disease Day! We are asking our PWS community to share how you "wear your rare." This can simply be sharing your PWS journey, a quote that inspires you, or a picture of you and your loved one! Thank you for helping us shine a light on Rare Disease Day.
  • *If you're willing, upload a photo of your loved one living with PWS.