We Are Stronger Together
Our Mission:
To enhance the quality of life of and empower those affected by Prader-Willi syndrome.
Family Support
PWSA | USA supports individuals diagnosed with Prader-Willi syndrome, their families, and care providers with critical information and resources. We educate medical providers, educators, and professional care givers about PWS and how to best support individuals with the syndrome. Donate to the Family Support Advocacy here.
Research
PWSA | USA seeks to support research projects with the potential for immediate and high impact for the PWS community. The goal is to fast-track better treatment for the syndrome, and we proudly collaborate with partners representing pharmaceutical companies, research universities, and more to achieve that goal.
Advocacy & Awareness
Raising awareness and effective advocacy are critical to effecting positive change in and for the Prader-Willi syndrome community. PWSA | USA is committed to empowering individuals with PWS and their families with resources and tools such as the Public Policy Action Center.
Events and Fundraisers
Support Joe Gill as he runs the 2022 Boston Marathon in honor of his brother, Gavin, who is living with PWS.
Have you been looking for an easy way to raise awareness and funds to support PWSA | USA in your workplace, school or community group? If the answer is YES - click HERE!
Calling all East Coasters! Grab your clubs and head to the 1st Annual No Gimmes for Jimmy Charity Golf Outing. Learn more and purchase your tickets HERE today!
Latest News
Dr. Miller Phase 2 Oxytocin Trial Webinar
Dr. Jennifer Miller’s webinar on the Phase 2 Oxytocin study recording is available. Click here to view the recording.
Prader-Willi syndrome: a review of clinical, genetic, and endocrine findings
We are pleased to share the following new publication which was written by three of our PWSA (USA) Advisory Board members: Prader-Willi syndrome: a review of clinical, genetic, and endocrine findings M. A. Angulo, M. G. Butler &M. E. Cataletto Journal of Endocrinological Investigation (Springer) Click HERE to read the publication
PWSA (USA) Saving Lives in the ER
One of our goals for 2015 is to focus on ways to have more impact with ER situations. We all know that taking a child or an adult with Prader-Willi syndrome to the ER can in and of itself be life-threatening. I certainly know this through my experience of covering most medical crises for over...