We Are Stronger Together
Our Mission:
To enhance the quality of life of and empower those affected by Prader-Willi syndrome.
Family Support
PWSA | USA supports individuals diagnosed with Prader-Willi syndrome, their families, and care providers with critical information and resources. We educate medical providers, educators, and professional care givers about PWS and how to best support individuals with the syndrome. Donate to the 2020 Family Support Campaign here.
Research
PWSA | USA seeks to support research projects with the potential for immediate and high impact for the PWS community. The goal is to fast-track better treatment for the syndrome, and we proudly collaborate with partners representing pharmaceutical companies, research universities, and more to achieve that goal.
Advocacy & Awareness
Raising awareness and effective advocacy are critical to effecting positive change in and for the Prader-Willi syndrome community. PWSA | USA is committed to empowering individuals with PWS and their families with resources and tools such as the Public Policy Action Center.
Events and Fundraisers
June 22nd – 26th, 2021
An exciting virtual format with a fantastic lineup of inspiring speakers and networking events combine to make the
2021 PWSA | USA National Convention the best one yet!
Registration is NOW Open! Click here to Register!
Sponsors
2021 National Convention Sponsors










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Latest News
Living and Thriving with PWS (Part 3)
Living and Thriving with PWS – Love, Faith, and Future Grace By Derek Montecalvo One day, at the residential home in Barnstable where I was living, there was a commotion outside as staff and residents transitioned a new resident into his room. A beautiful young woman happened upon my doorstep during this transition. The...
News Release: Rhythm Wins FDA Approval for Obesity Drug Imcivree
Rhythm Pharmaceuticals Inc., a company developing medicines for rare genetic disorders of obesity, has won FDA approval for its first product, Imcivree (setmelanotide), following a priority review. The drug is designed to restore a biological pathway that, when disrupted, can lead to constant hunger. The approval covers the treatment of three types of ultrarare early...
Statement from Members of the Clinical Advisory Board (CAB) Regarding People with PWS and COVID-19 Immunization
The types of vaccines now available against COVID-19 use mRNA technology. This type of vaccine has been under development for many years and, unlike other immunizations, does not place a weak or inactive germ into the body, but instead teaches cells in our body to make an immune response that then produces antibodies which provide protection if...