We Are Stronger Together
Our Mission:
To enhance the quality of life of and empower those affected by Prader-Willi syndrome.
Family Support
PWSA | USA supports individuals diagnosed with Prader-Willi syndrome, their families, and care providers with critical information and resources. We educate medical providers, educators, and professional care givers about PWS and how to best support individuals with the syndrome. Donate to the Family Support Advocacy here.
Research
PWSA | USA seeks to support research projects with the potential for immediate and high impact for the PWS community. The goal is to fast-track better treatment for the syndrome, and we proudly collaborate with partners representing pharmaceutical companies, research universities, and more to achieve that goal.
Advocacy & Awareness
Raising awareness and effective advocacy are critical to effecting positive change in and for the Prader-Willi syndrome community. PWSA | USA is committed to empowering individuals with PWS and their families with resources and tools such as the Public Policy Action Center.
Events and Fundraisers
Join us for the 37th National Convention, June 21-24, 2023 in Orlando, FL!
Have you been looking for an easy way to raise awareness and funds to support PWSA | USA in your workplace, school or community group? If the answer is YES - click HERE!
Become a PWS Hope United Champion by hosting your own peer-to-peer fundraiser in support of PWSA | USA! Learn more by clicking below.
Latest News
Sharing Our Rare: Sue Colon
Rare Disease Day, which falls on February 28th each year, helps shine a light on the roughly 7,000 recognized rare diseases. To assist in this effort, we have been asking our community to tell us how you "share your rare" for Prader-Willi syndrome. One unique and impactful way we have heard from families is how...
PWSA | USA Accepting Convention 2023 Scholarship Applications
Thanks to the generosity of an anonymous donor, PWSA | USA is offering scholarships for our upcoming 2023 National Convention, June 21-24, 2023, in Orlando, FL. Guidelines for submitting a scholarship application are as followed: You must be a first-time PWSA | USA National Convention attendee Scholarship funds can be applied toward a Conference registration,...
Creating Your Child’s Education File
Have you ever walked away from an Individualized Education Program (IEP) meeting and thought to yourself, “That’s not what they told me during the last meeting” or, “Why are we having the same discussions each meeting? This is a waste of time.” Having an organized file that encompasses all documents regarding your child’s education will...