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Please Participate in Research on PWS Caregiver Stress

I would like to invite you to participate in a research study on the ‘Relationship between caring for individuals diagnosed with Prader-Willi syndrome (PWS) and caregiver stress’. The results will provide vital information to caregivers, service providers, and policy makers on strategies and supports needed in the care of individuals with PWS. The survey will […]

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Triple Your Impact with #GivingTuesday!

There is still time left to have your gift tripled! Please join with many others today by making a donation to the PWSA (USA) Angel Drive for 2016. As an added bonus, two generous donors will double match all donations made today up to $20,000. We have $5,000 of that match left to activate. We […]

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Double Your Impact with Angel Drive Today!

#GivingTuesday is a day defined by generosity. Please join with many others today by making a donation to the PWSA (USA) Angel Drive for 2016. As an added bonus, a generous board member will match all donations made today, November 29th, up to $10,000. So now is a great time to donate and have the […]

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Holidays and PWS Food Security

Family time and food go hand in hand. With planning, this can be a joyous time for all. Without a plan – it can be even more stressful than ever imagined If you will be with relatives, remind them of the importance of food security, especially at a big event. Many people do not understand […]

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How Your Support Helps PWS Families

A Family’s Story For 19 years, the Angel Drive had provided critical funding to help thousands of PWS families. Please see one family’s story below. We are “Saving and Transforming Lives”. Hi! Our child’s school study team made our son’s eligibility for special education and services appear as if he qualified for a coveted position. […]

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A PWS Family’s Story

For 19 years, the Angel Drive had provided critical funding to help thousands of PWS families. Please see one family’s story below. We are “Saving and Transforming Lives”. Hi! I would like to introduce you to my crazy beautiful family. Moises (daddy) Breanna (myself/aka mommy) Madison (10.5 yrs.) Noah (6.5 yrs. diagnosed with cerebral palsy) […]

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Exciting News on Carbetocin for PWS!

Sara Cotter, mom to a child with Prader-Willi syndrome (PWS), has formed a company dedicated to advancing treatments for PWS and related disorders. The company is called Levo Therapeutics (www.levotheraputics.com). Sara has years of experience in the pharmaceutical industry, most recently as an analyst with UBS. She recently left her job to pursue the leadership […]

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