On June 17, 2021, representatives from PWSA | USA, FPWR and experts in the field of Prader-Willi syndrome research met with the FDA’s Center for Drug Evaluation and Research to discuss issues related to PWS clinical trials. The purpose of this meeting was to promote dialogue between PWSA | USA, FPWR and members of the...
On behalf of Radius Health, Inc: Boston, Mass., July 22, 2021 — Radius Health, Inc. announced Wednesday, July 21, 2021 that it has recently received the written meeting minutes from a June Type C meeting held with the U.S. Food and Drug Administration (FDA) regarding RAD011, a synthetic cannabidiol oral solution. RAD011 is initially to...
More than $3 billion in funding is set to be dispersed to schools around the country to meet the needs of students with disabilities after the fallout from COVID-19. Some of the funding will be used to support:Special Education programs for students between 3- and 21-years-oldPreschool offerings, specifically for infants and toddlers with disabilities
Rare Disease Week will take place July 14, 2021 – July 22, 2021 and it’s a chance to make your voice heard! EveryLife Foundation will be leading Rare Disease Week, which educates those of the rare disease community on federal legislative issues, meet other advocates, and share their unique stories with legislators. If you are...
October 19 @ 8:00 pm - 9:00 pm
October 22 @ 6:30 pm - 9:00 pm
March 26, 2022