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NEXUS CHILDREN’S HOSPITAL ANNOUNCES PROGRAM RESTART

HOUSTON — January 22, 2018 — Nexus Health Systems is excited to announce the restart of their national Changes Health and Wellness program at Nexus Children’s Hospital, on the west side of Houston. Reopening on January 15, the program offers support and treatment for patients with Prader-Willi Syndrome (PWS), a rare genetic disorder that affects learning […]

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Convention Connections: One Mother Shares How the PWSA (USA) Convention Helped Her and Her Family

A few days ago, I was chatting with a fellow special needs mama when she mentioned that there was a conference on the other side of the country for the condition her daughter has, but she wasn’t sure if she should go. It took everything in me to not tell, “WHAT?! ARE YOU NUTS?!” Instead, […]

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PWSA (USA) ADVOCACY ALERT NETWORK SEEKS MEMBERS

The PWSA (USA) Advocacy Committee is seeking interested persons to participate in the newly created Advocacy Alert Network. Persons who join the Network will be notified by Committee members of pending legislative issues affecting PWS and be provided with a model email or letter that can be used to contact legislators regarding the issue. In […]

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13 Year Old with PWS Will Be On a Popular TV Show!

We have exciting news for you all! On Monday, June 27th, Jack Lindsey who is 13 years old and has PWS will be on a popular TV show on the sportsman channel at 6pm CST. The opening episode features Jack hunting and killing a buck with his bow. The air times are as followed: Mon. […]

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Special Message from Mayim Bialik – PWS Awareness Month

It’s PWS Awareness Month! Special message from Mayim Bialik! Mayim Bialik and PWSA (USA) are working together to help raise awareness for Prader-Willi syndrome. In honor of PWS awareness month, if you register and raise a minimum of $200 from now until May 31st, you will be entered for a chance to win an Amazon […]

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Mayim Bialik Spreading Awareness For Prader-Willi Syndrome and PWSA (USA)

We would like to thank Mayim Bialik  from the hit comedy TV show “The Big Bang Theory” for her wonderful blog article she wrote about Prader-Willi syndrome, PWSA (USA) and this years Angel Drive on her website GrokNation. It begins with a community! Let’s Save and Transform Lives! Click the link below to read the full […]

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Two New Prader-Willi Syndrome Films

PWSAI (Ireland) has released a new film that was produced in cooperation with IPWSO and PWSA (USA). The film is Therapeutic Interventions for the Young Child with Prader-Willi Syndrome presented by Janice Agarwal, CNDT-PT The film was funded from the proceeds of the Galway Cycle 2014. We are very grateful to Janice for her participation […]

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Submit Your Picture: Casting Call For This Years Angel Drive!

PWSA (USA) is asking our PWS community to submit pictures of your loved one with PWS for our 2015 Angel Drive Campaign! The photos selected will be the face of this year’s Angel Drive campaign. If you would like to submit a photo for the opportunity for your loved one to be among the faces […]

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