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INDIVIDUALLY WE ARE RARE…TOGETHER WE ARE STRONG: PARENT MENTOR PROGRAM 
STRENGTHENS PWS COMMUNITY

On September 8, 2018, PWSA (USA) help a parent mentor workshop at the Monroe Carrell, Jr. Children’s Hospital at Vanderbilt University in Nashville, Tennessee. PWSA (USA) Parent Mentor Director, Diane Seeley, created the innovative workshop to educate parent mentors about a variety of topics, including current trends in dietary management, advantages and safety of various […]

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APPLIED BEHAVIOR ANALYSIS AND PRADER-WILLI SYNDROME, PART 1: EXPLAINING ABA

 By: Cindy Szapacs, M.Ed. BCBA  Before getting into the nuts and bolts of this article, I would like to introduce myself and explain why I am writing this series of articles. I am a mother of two boys, one of whom has Prader-Willi Syndrome. I also am a Board Certified Behavior Analyst. I currently work […]

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ROSE COLORED GLASSES

by Abigail Ogilbee Have you ever worn a great pair of sunglasses in the summer? The lake isn’t as blinding when the sun hits the waves, the trees are a little greener, and the world is a little more crisp. Take them off and the sun burns your eyes making you squint with pain. Elsa […]

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Meet Your Family Support Team

Kate Beaver, MSW, CSW-Family Support Counselor Because her daughter has Prader-Willi syndrome, Kate had first-hand knowledge of the challenges families encounter with the syndrome and had valuable personal experience in how to access services and support for her family prior to joining the PWSA (USA) staff. As a Crisis Intervention and Family Support Counselor, Kate’s […]

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Managing Behavior

One of the most difficult challenges parents face is managing their child’s behavior.  Whether it occurs at home, at school, or in a residential care setting, problematic behavior is one of the most frequent reasons parents and providers call PWSA (USA) for help. The first step to effectively manage behavior is to identify the problematic […]

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Recording of Recent Webinar: How Patients Can Partner to Speed Treatments for PWS, co-presented by FPWR and PWSA-USA, is now Available

  The recent webinar: How Patients Can Partner to Speed Treatments for PWS, co-presented by FPWR and PWSA-USA, is now available. This webinar provides important information about PWS clinical trials including: what to expect when participating in a clinical trial, what questions you should ask, and how to get the information you need to decide if […]

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LivingHealthy with Prader-Willi Syndrome
: Cookbook and Nutrition Tips

To purchase this item, click here   Latham Centers recently published its first cookbook entitled LivingHealthy with Prader-Willi Syndrome: Cookbook and Nutrition Tips. Written for the Prader-Willi syndrome community, the cookbook is a complete resource for planning nutritious, delicious meals for individuals with PWS— and for tips and advice from experts in the field. The menu […]

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A Mother’s Day Gift

By Lori Moline  After a long, harsh Minnesota winter, the sounds of birds, and the sight of greenery and flowers are like a transfusion of hope- That’s why one of our family’s favorite activities is the annual trek to the local greenhouse and plant store.  This year, with everyone else busy with other things, Sophie […]

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