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Exercise and Behavior

You’ve heard exercise is good for physical health, but did you know research also shows exercise is beneficial to mental health and mood? According to the Mayo Clinic, physicalactivity stimulates endorphins in the brain that elevate mood and encourage relaxation. Exercise can fend off depression and anxiety in individuals with PWS and can even combat […]

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PWS Awareness Month Week 2 Mini Blog – Positive Behavioral Support

So far, we have looked at some of the many reasons negative behaviors occur, as well as behavior management techniques helpful with individual with Prader-Willi syndrome. Positive Behavioral Supportis another essential tool for caregivers. Positive behavioral support can help decrease tantrums, reduce perseverative and OCD like behaviors, and increase cooperation and effective transitions through activities. […]

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PWS Awareness Month Week 2 Mini Blog – Oppositional Behavior

Individuals with Prader-Willi syndrome often demonstrate oppositional behavior, another challenge for parents and caregivers. Tips for managing oppositional behavior include: Avoid yes and no questions. Instead, offer limited choices. Rather than asking, “Do you want to wear your red coat,” try offering two choices: “Do you want to wear your red or blue coat?” It […]

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PWS AWARENESS MONTH WEEK 2 MINI BLOG – Perseverating

Perseverating, or getting stuck on a topic or task, or repeating the same question or phrase over and over again, is common in Prader-Willi syndrome. Often, the repetitive behavior is provoked by anxiety as the repetition provides a level of comfort to an individual with PWS. Unfortunately, perseverating can be exhausting for parents and caregivers. Here […]

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PWS Awareness Month Week 2 Mini Blog – Managing an Outburst

My loved one with PWS is having a behavior outburst, tantrum or meltdown. What can I do?   Being prepared and working with the individual with PWS to understand a triggering situation while helping them manage their anxiety can make difficult situation much easier to handle.   Use a calm tone of voice. Yelling or […]

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PWS Awareness Month Week 2 Mini Blog – Behavioral Outbursts

Many individuals with Prader-Willi syndrome face emotional and behavioral challenges that present as outbursts. However, whether it’s caused by a change in routine or the presence (or absence) of food outbursts can be managed. For example, maintaining food security and adhering to a set schedule for snacks and meals will decrease food-related anxiety, and providing […]

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Prader Willi Syndrome Awareness Month

By Stacy Ward  May is National PWS Awareness Month! PWS Awareness Month came to be thanks to the efforts of Amy Porter and Prader Willi California Foundation members, Tom and Renay Compere, who brought the syndrome and the needs of the PWS community to the attention of Republican Congressman Ed Royce and Democratic Congresswoman Jane Harman. […]

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PWS Awareness Month: Week 1

Not on social media?  No problem!  PWSA (USA)’s daily PWS Awareness Month posts are available right here for you to access anytime.   Day 1 May is Prader-Willi Syndrome Awareness Month! Republican Congressman Ed Royce and Democratic Congresswoman Jane Harman co-sponsored the original House Resolution thanks to efforts by Amy Porter (Aunt to Colorado’s young […]

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