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A Dad’s Love

I’m not much of a Facebook person, in fact other than a few pictures over the years I’m pretty sure I’ve never actually written anything. I’m not much of a writer either. The last time I wrote this much I was probably back in college and that was double spaced in 14.5 font in order […]

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“Kicking The Can” with PWS

Written by: Sara Grosso For the last few months I’ve focused on modeling an active lifestyle and healthy eating choices for Grayson. Running is beginning to become a habitual part of my daily routine. The length and route of each run depend entirely on what kind of “adventure” takes place between the hours of 5:00 […]

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The Confusing World of Growth Hormone Insurance Coverage and Denials

The Confusing World of Growth Hormone Insurance Coverage and Denials – Kathy Clark, PNP, PWSA (USA) Coordinator of Medical Affairs   It may feel like insurance companies are the enemy when they deny a medication that we feel is so important to our children. There are some complex explanations that I will list here that […]

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Weathering the Storm – A Mother’s Story

Written by: Sara Grosso My name is Sara Grosso. I am the mother of Grayson Grosso, who was diagnosed with Prader-Willi syndrome at just one month after birth. He is a thriving two-and-a-half-year-old boy now and it has taken me nearly his entire life to put his story into writing, because, frankly, it makes me […]

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