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Important Information regarding COVID-19

PWSA (USA) is aware that the threat of illness is always a potential danger to those with PWS, their families and community.  We advise our families to be extra vigilant in their efforts to prevent the spread of viral illness especially at this time when COVID-19 is likely to be present in their communities at […]

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Meet Our Hope Hero: Lauren

She’s 39 now, my Lauren, and tonight is the big Night to Shine Dance (sponsored by the Tim Tebow Foundation).  We’ve been doing all the things that girls do when you prepare for prom or a formal dance.  Fittings, alterations, accessories, hair and make-up.  She’s as excited about this as she was about the prom […]

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Sleep-Related Breathing Disorders in Young Adults With Prader-Willi Syndrome: A Placebo-Controlled, Crossover GH Trial

Sleep-related breathing disorders (SRBD) are common in people with Prader-Willi syndrome (PWS). Young adults with PWS benefit from GH continuation after attaining adult height by maintaining the improved body composition obtained during childhood. There are, no studies about the effects of GH on SRBD in young adults with PWS who were treated with GH during childhood. The objective […]

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