Clinical/Scientific Advisory Board (CSAB)
Ann Scheimann, MD, MBA
Chair
Gastroenterologist
Johns Hopkins School of Medicine
Baltimore, MD
Ann Manzardo, PhD, MS
Vice-Chair
Kansas University Medical Center
Kansas City, KS
David M. Agarwal, MD
Vascular and Interventional Radiologist
Indiana University School of Medicine
Indianapolis, IN
Moris Angulo, MD
Endocrinologist and Geneticist
Department of Pediatrics
Winthrop University Hospital
Mineola, NY
Merlin G. Butler, MD, PhD, FFACMG
Physician Scientist, Clinical Geneticist and Clinical Cytogeneticist
University of Kansas Medical Center
Mary Cataletto, MD
Pulmonologist
Prader-Willi Center
Winthrop University Hospital
Mineola, NY
Gregory Cherpes MD
Jessica Duis, MD, MSc
Pediatric Geneticist/Special Care Pediatrician
Director, Prader Willi Multidisciplinary Center
Children’s Hospital Colorado/University of Colorado
Aurora, CO
Janice Forster, MD
Psychiatrist, Pittsburgh Partnership
Pittsburgh, PA
Linda Gourash, MD
Pittsburgh Partnership
Specialists for Prader-Willi Syndrome
Waheeda Hossain, MD, MPH
Janet Li, MD
Female Pelvic Medicine and Reconstructive Surgery
Harvard Vanguard Medical Associates
Boston, MA
James Loker, MD
Pediatric Cardiologist
Bronson Methodist Children's Hospital
Kalamazoo, MI
Shawn McCandless, MD
Jennifer Miller, MD, MS
Endocrinologist
University of Florida, College of Medicine
Gainesville, FL
Matt Rivard, MD, MBA, FACS
Chief of Surgery
Nebraska-Western Iowa Health Care System
Amee Revana, DO, FAASM
Associate Professor of Pediatrics
Associate Medical Director of the Children's Sleep Center at Texas Medical Center (TMC)
Baylor College of Medicine/Texas Children's Hospital
Pediatric Pulmonary & Sleep Medicine
James Resnick, PhD
Daniela Rubin, PhD, FACSM
Exercise Physiology Scientist
Professor in Kinesiology
California State University Fullerton
Fullerton, CA
Parisa Salehi, MD
Associate Professor
Division of Endocrinology & Diabetes Seattle Children's
Clinical Director, Prader-Willi Syndrome Clinic
Althea Shelton, MD, MPH
Deepan Singh, MD, FAPA
Vice-Chair
Ambulatory Services
Department of Psychiatry
Maimonides Medical Center
Brooklyn, NY
Harold J.P. van Bosse, MD, FAAOS
Department of Pediatric Orthopaedic Surgery
SSM Health - Cardinal Glennon Children’s Hospital
St. Louis University
St. Louis, MO
Stefanie Varga, PhD
Olivia Veatch, PhD
Assistant Professor
University of Kansas Medical Center
Kansas City, KS
Barbara Y. Whitman, PhD
Professor of Pediatrics
Assistant Dean of Graduate Medical Education
Saint Louis University School of Medicine
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.