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Empowering Individuals

Supporting Families

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Here's How YOU Can Support PWS Advocacy Efforts

We encourage the PWS community to join PWSA | USA’s 2024 Walk a Mile in their Genes Advocacy Campaign. Participants will not only raise awareness for our rare disease, but  needed funds to enable our organization and volunteers to effectively advocate for the unmet needs of our loved ones living with PWS. Get involved and learn more by clicking the button below. 

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New Diagnosis?

Fill a New Diagnosis form to receive our Package of Hope, a Parent’s Guide to PWS.
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Join our Newsletter

Join our mailing list for PWS community updates and other relevant information.
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Update Contact Info

Let us know your updated information so you can stay up to date with all things PWSA.
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What we do

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PWS Advocacy & Awareness

Increasing awareness and effectively advocating for Prader-Willi syndrome at the state and federal level is a critical component of our mission. We seek to involve all members of our community and work to keep you informed on the best ways to affect change.
Learn about Prader-Willi Syndrome (PWS)

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PWS Family Support

PWSA | USA' Family Support team provides individuals diagnosed with Prader-Willi syndrome, their families, and care providers with critical information and resources on PWS. We also provide education to medical providers, schools, and professional care givers through ongoing trainings, toolkits and other valuable resources. We support the family from the NICU through all stages of the PWS journey.

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Prader-Willi Syndrome Research

PWSA | USA seeks to support research projects with the potential for immediate and high impact for the PWS community. The goal is to fast-track better treatment for the syndrome, and we proudly collaborate with partners representing pharmaceutical companies, research universities, and more to achieve that goal.

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PWS Events & Fundraisers

Upcoming Events

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