We are here to help! We are committed to ensuring that newly diagnosed families have the most up to date research material, educational literature, counseling, nutrition, and medical information all within our Package of Hope which we have been providing to families for well over a decade. Click the icon above to learn more.
Donate today to help PWSA (USA) provide life saving research, crisis/medical support, family support and newly diagnosed/new parent support. We have been Saving and Transforming Lives since 1975. Click the icon above to donate!
Welcome! PWSA (USA) membership is more than just a membership, it’s a community. Members strengthen the mission of PWSA (USA) by providing important funding for our family support and research efforts. Click the icon above to learn more.
There are many ways you can get involved in helping the Prader-Willi Syndrome Association (USA) locally and globally. With our many On The Move Walks and online fundraisers such as eWalk, we have something available for everyone. We welcome you into our amazing community! Let’s Save and Transform Lives together! Click the icon above to learn more.
Thanks to the incredible generosity of the PWS community, we have met and exceeded our $100,000 goal for the 24 Hour Giving Challenge. 429 of you stepped forward and answered the call for help. We are extremely humbled by this outpouring of support.
$109,466 was raised during the 24 hours. What a truly amazing community we have. Your donations will ensure that we will continue to be able to meet the exploding demand we are experiencing for our family and medical crisis support activities.
Your help is needed today! Our organization continues to meet the increasing demand for our support services. In 2015, we completed 2,013 support activities to assist families and people living with PWS. In the first half of 2016 we have already completed 1,443 family support activities, an increase of 43% compared to the first half of 2015
TREND and PWSA (USA) are excited to support Drs. Jennifer Miller and Dan Driscoll in their endeavor to gain FDA approval to make oxytocin a standard of care for Prader-Willi syndrome (PWS).
The author is donating 50 percent of the proceeds from his book “Diehards” to PWSA (USA)
We would like all parents or caregivers of children and adults with PWS ofall ages, living or deceased to fill out this survey