Request for Prader-Willi Syndrome Research and Mini-Fellowship Grant Applications   

The Prader-Willi Syndrome Association USA (PWSA | USA) is a nonprofit organization formed in 1975 to enhance the quality of life of those affected by Prader-Willi Syndrome (PWS) through research, family support, and advocacy. The purpose of this request is to solicit applications for research projects whose findings will directly impact individuals living with PWS and their families.

We are also proud to announce a new initiative to provide mini-fellowship grants to support providers to deepen their knowledge of Prader-Willi Syndrome through clinical proctorships with individuals with expertise in Prader-Willi Syndrome.

The PWSA | USA research priorities are to gather knowledge about PWS, support the application of therapies, and recruit new providers and investigators to the field.

With regards to research topics, a broad range of areas will be considered, from societal and behavioral to biological, particularly in understudied areas such as adult health, quality of life, positive health outcomes, and diverse populations. Support is limited to clinical studies on human subjects and includes retrospective/secondary data analysis and medical informatics.

Types of Awards Available

PWSA | USA will consider three types of funding:

  1. Applicants may request up to $100,000 USD to fund research on Prader-Willi Syndrome. The term of the award is 12 months, with the possibility of a second grant period of 12 months of funding upon competitive renewal.
  2. Applicants may choose to request a smaller budget and/or shorter duration.  Awards of up to $10,000 USD may be considered on an individual and rolling basis until August 15, 2024.
  3. PWSA | USA will also consider funding a mini-fellowship of up to $25,000 USD to enable providers currently in practice to shadow providers with expertise in Prader-Willi Syndrome in combination with an academic project. The requirements directly below apply to any mini-fellowship to the extent that they are applicable. Please refer to the mini-fellowship application guidelines* at the end of this document for additional information.

Please submit LOI’s to: Stacy Ward at If you have questions, please call (941) 312-0400.

Read our full announcement and additional LOI guidelines by clicking the button below.