We Are Stronger Together

Our Mission:
To enhance the quality of life of and empower those affected by Prader-Willi syndrome.

Family Support

PWSA | USA supports individuals diagnosed with Prader-Willi syndrome, their families, and care providers with critical information and resources. We educate medical providers, educators, and professional care givers about PWS and how to best support individuals with the syndrome. Donate to the Family Support Advocacy here.



PWSA | USA seeks to support research projects with the potential for immediate and high impact for the PWS community. The goal is to fast-track better treatment for the syndrome, and we proudly collaborate with partners representing pharmaceutical companies, research universities, and more to achieve that goal.

Advocacy & Awareness

Raising awareness and effective advocacy are critical to effecting positive change in and for the Prader-Willi syndrome community. PWSA | USA is committed to empowering individuals with PWS and their families with resources and tools such as the Public Policy Action Center.


Events and Fundraisers


2021 National Convention Sponsors

Latest News

Jacob’s Story

Jacob’s Story, as told by his mom, Teri: “Jacob is my 25 year old son with UPD PWS. Thankfully PWSA has been there for us since Jacob was born. We have definitely had challenges over the years. Those teenage years were filled with behaviors so we tried an ISL (independent supported living) in Kansas City,...

Pioneers in Advocacy for Special Education

Many students with PWS and parents have faced many challenges over the years in educating and advocating for their right to a free and appropriate education.  PWSA l USA staff have spent many hours developing handouts, participating in Individual Education Planning meetings and assisting families in addressing other educational concerns.  In 2015, The Special Education...

Hunter’s Story: Our Happy Boy!

Hunter’s Story, as told by his mom, Nicolette: “I am mom to Hunter who is almost 2 years old. We have made it through many ups and many downs over the last almost 2 years. When Hunter was born he spent 43 days in 2 different NICUs. He was born at a hospital that thankfully...