Family Support
PWSA | USA supports individuals diagnosed with Prader-Willi syndrome, their families, and care providers with critical information and resources. We educate medical providers, educators, and professional care givers about PWS and how to best support individuals with the syndrome. Donate to the Family Support Advocacy here.
Research
PWSA | USA seeks to support research projects with the potential for immediate and high impact for the PWS community. The goal is to fast-track better treatment for the syndrome, and we proudly collaborate with partners representing pharmaceutical companies, research universities, and more to achieve that goal.
Advocacy & Awareness
Raising awareness and effective advocacy are critical to effecting positive change in and for the Prader-Willi syndrome community. PWSA | USA is committed to empowering individuals with PWS and their families with resources and tools such as the Public Policy Action Center.
Giving Tuesday: Here’s How You Can Support PWSA | USA
Are you planning on making a year-end gift? Giving Tuesday is just one week away and is the perfect opportunity to show your support! Thanks to the generosity of an anonymous donor, your Giving Tuesday donation will be MATCHED dollar for dollar up to $13,000. Make a gift on November 30, 2021 and give twice the good...
Bid on Dozens of Incredible Angel Drive Auction Items
We are excited to share that the 2021 PWSA | USA Angel Drive Auction is now LIVE, and just in time for the holidays! Browse through our incredible items and place your bids TODAY! Funds from the auction support our 2021 Angel Drive. Together, we can help to make sure all families have the support...
8th Annual Clint Hurdle Hot Stove Dinner 2022: Save the Date!
We are excited to announce the date for the 8th Annual Clint Hurdle Hot Stove Dinner. Please mark your calendars for March 26, 2022 and save the date to join us on Anna Maria Island or online! Sip, Savor, and Support Prader-Willi Syndrome Association | USA while enjoying the outdoor event on the beautiful grounds...
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.