Prader-Willi Syndrome Diagnosis – THERE IS HOPE!

If your baby is in the NICU, Click here for more information.  Click here for Spanish version.


Dear New Parent:

If your child has recently been diagnosed with Prader-Willi syndrome, we would love to provide you with a bundle of materials, appropriately called The Package of Hope. This encouraging package includes a variety of publications we believe will help answer many of your questions and offer guidance on critical issues such as:

  • Nutrition
  • Medical concerns
  • The use of Growth Hormone as a treatment for Prader-Willi syndrome

We would also like to present you with a free one-year PWSA (USA) membership (USA only), including a subscription to The Gathered View, our bi-monthly newsletter and other benefits, such as:

  • PWSA Parent Mentoring Program
  • Age-specific online support communities

Please fill out and submit the Prader-Willi syndrome diagnosis form so we can contact you with details on these helpful programs and materials!


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*This information will be used only to assure that PWSA (USA) is appropriately reaching all ethnicities with our educational materials, and our message of hope and encouragement. Submitting this information is purely voluntary and refusal to provide it will not change the way PWSA (USA) provides materials or services. As with all private information shared with us, your responses will remain confidential.