Little in life is more frightening than learning your child has a life-altering genetic condition such as Prader-Willi syndrome (PWS).
Somewhere within a the confusing medical jargon and battery of tests lies your family’s new “normal,” and just as importantly, your child’s future. Finding comfort, support, and information about how to best care for your child’s needs can feel just as overwhelming as the diagnosis itself.
Prader-Willi Syndrome Association (USA) has been providing hope and support for individuals with PWS and their families for over 40 years. Our comprehensive support programs are available to families every step of the way, offering information and resources for new diagnosis, school assistance, behavior management, and more. As demand for our services continues to grow, PWSA (USA) relies on the generosity of our donors to make our work possible. Your donation to PWSA (USA) is an investment with a priceless return.
Our targeted programs dealing with behavior modification, nutrition education, crisis intervention, education advocacy, guardianship, medical intervention, and legal and legislative advocacy are an important lifeline to our families. In 2016, our staff team handled over 2370 family crisis and medical activities, and provided staff and material support to the families of 218 newly diagnosed children. Without PWSA (USA), families would have nowhere to turn, but with your financial support, we can continue to serve the needs of PWS families.
Questions? Contact RIKKA BOS 941-487-6729 RBOS@PWSAUSA.ORG