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Rare Across America 2022
August 8, 2022 - August 19, 2022
When: August 8th to August 19th
Virtual and In-Person Meetings
Rare Disease Legislative Advocates (RDLA) organizes meetings for rare disease advocates with their Members of Congress and/or their staff with the Member’s in-state, district office. Meetings with Representatives will be in-person and meeting with Senators will be virtual. Advocates have the option of attending an in-person meeting with their Representative and/or virtual meetings with their Senators. Advocates can choose to do both the in-person meeting with their Representative and the virtual meetings with their Senators. The RDLA team also helps to prepare advocates for their meetings, provides legislative resource materials, and hosts pre-meeting training webinars. No prior advocacy experience is necessary.
Rare Across America – EveryLife Foundation for Rare Diseases