Prader-Willi Syndrome Association (USA)

Donor-Privacy Policy

All information concerning donors or prospective donors, including their names, addresses, telephone numbers, the names of their beneficiaries, the amount of their gifts, etc., shall be kept strictly confidential by Prader-Willi Syndrome Association (USA), its staff and volunteers.

PWSA (USA) respects the privacy of all donors. To safeguard your personal information and protect your privacy, all databases are password protected and stored in a restricted access file.

PWSA (USA) maintains data security measures in line with current industry standards for its website to protect the Personal Information under its control within our organization against unauthorized access and disclosure. We incorporate industry standard security protocols (like SSL/TLS) and recommended technical, physical and administrative data security safeguards to create a site that is resistant to standard internet-based threats.  Role-based access ensures that only authorized personnel with specific unique IDs and passwords can access the donor database.  PWSA (USA) does not have direct readable access to any credit card number but can view transactions through our credit card merchant gateway through via our processing provider in order to void, refund or adjust transactions.

Your name, address and all other personal data you provide will be used only by PWSA (USA) to keep you abreast of our activities including our programs, special events and funding needs. If at any time you choose not to receive these communications, you may contact us to be removed from our mailing lists.

Prader-Willi Syndrome Association (USA) does not sell, lease, or rent donor names to other organizations or vendors. If you have any comments or questions about the Prader-Willi Syndrome Association (USA) donor-privacy policy, please email or call 800-926-4797.

PWSA (USA) 2017 990 Form, Click Here