Have you been looking for an easy way to raise awareness and funds to support PWSA | USA in your workplace, school or community group?
Wear jeans for rare genes ALL YEAR LONG! YOU can help PWSA | USA provide care for families in our community by simply wearing your jeans and donating a few dollars. Pick a date to host a "Wear Jeans for Rare Genes" fundraiser with your employer, your child’s school, church fellowship, etc. to help raise money for PWSA | USA!
Hosting a Wear Jeans for Rare Jeans fundraiser is as easy as 1, 2, 3:
- Pick a Day and let us know! Work with your location to select a date and make it a day to “Wear Jeans for Rare Jeans”- If you usually dress up, wear a uniform, or your “Sunday best” encourage people to wear jeans on this special day. Make it a fun and special occasion! Email us at events@pwsausa.org to let us know when you will be participating!
- Ask participants to donate ($1, $5, $10, or whatever is comfortable) for the opportunity to participate. Consider a friendly competition between classrooms, grades, office departments or locations! Each dollar collected will help PWS families living with this rare genetic disorder get the specialized support they need to help their loved ones thrive!
- Celebrate and share your success! Take a photo and email it to events@pwsausa.org letting us know how much you raised so that we can celebrate your efforts and use your success to inspire others! Checks can be mailed to: PWSA | USA, 1032 E Brandon Blvd #4744, Brandon, FL 33511 or the accumulated gift can be made online here: https://www.pwsausa.org/get-involved/donate/
THANK YOU for helping us bringing attention and awareness to PWSA | USA and our rare disease community. All donations collected will help advance research to treat individuals with PWS.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.