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Two New Prader-Willi Syndrome Films

PWSAI (Ireland) has released a new film that was produced in cooperation with IPWSO and PWSA (USA). The film is Therapeutic Interventions for the Young Child with Prader-Willi Syndrome presented by Janice Agarwal, CNDT-PT The film was funded from the proceeds of the Galway Cycle 2014. We are very grateful to Janice for her participation […]

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New Matching Gift Opportunity – Angel Drive

Reminder – It is not too late to donate towards #GivingTuesday and have your donation matched! Since we announced our $7,000 match for today, an additional donor has stepped forward and added $3,000 to our matching fund for a total of $10,000. He has asked that we extend the matching period through this week so […]

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Double Your Impact with Angel Drive on GivingTuesday

#Giving Tuesday is a day defined by generosity. On the Tuesday after Thanksgiving, December 1, please join with so many others by making a donation to the PWSA (USA) Angel Drive for 2015. As an added bonus, a generous board member will match all donations made on December 1, up to $7,000 total. So now is […]

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2015 Holiday Tips

Dear Friends, The holidays are typically a food fest in our country – and can be a time of stress for our PWS families. With good planning, it is possible to make it a happy holiday for all. If you will be with relatives, carefully plan ahead of time and communicate the importance of food […]

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PWSA (USA) National Conference

What an amazing conference this will be! PWSA (USA) is celebrating its 40th year as the largest support, research and advocacy organization for people and families with Prader-Willi syndrome in the United States. This conference will reflect on what we’ve accomplished and expound on what is ahead. Each age group will have a different set […]

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New Oxytocin Phase 2 Study Match Announced!

Thank you to our PWS community for responding to the challenge match announced by Prader-Willi California Foundation (PWCF). Donors responded by the October 30th deadline to activate the $10,000 match and the release of an additional $10,000 match to be provided at a later date by PWCF. We have raised $385,000 for this study that […]

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The Zafgen Clinical Trial Partial Hold

I would like to assure our PWS members that both PWSA (USA) and FPWR have been involved with discussions with Zafgen and the FDA regarding safety issues on the Zafgen clinical trial. A “partial hold” means that the study can continue with additional safety monitoring. We are in full support of the additional safety monitoring […]

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Prader-Willi California Foundation to match gifts for Oxytocin study!

$20,000 In 20 Days for Oxytocin Research! Thanks to the generosity of the Prader-Willi California Foundation (PWCF) a $10,000 matching grant has been announced for the Oxytocin phase 2 study, led by Dr. Jennifer Miller. PWCF will donate $10,000 if PWSA (USA) can raise $10,000 over the next 20 days. So for the next twenty days we have […]

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