PWS Community Day in Miami, FL
PWS Community Day in Miami, FL
When: April 25, 2026 | 1:00 – 4:00 PM
Where: Miami Children’s Museum (980 MacArthur Cswy, Miami, FL 33132)
CLICK HERE TO REGISTER (Free to attend)
Join for a day of connection, care, and fun for families in the community. Soleno Therapeutics is committed to supporting the community and advocating for the treatment of hyperphagia associated with PWS. In collaboration with Prader-Willi Syndrome Association | USA and The Foundation for Prader-Willi Research, we invite you to PWS Community Day—a welcoming space for families like yours to connect, recharge, learn, play, and create together.
While event activities won’t begin until 1:00 PM, attendees are welcome to enjoy the museum from 10:00 am–12:45 pm. You will need to check in with event organizers first to receive your wristbands. Food will NOT be provided during the event, but please feel free to pack a snack or lunch from home. A separate, secure space will be provided should your child need to eat.
Check out the image below for the full event schedule.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.