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A Bow for Áine Mirella: Performance for PWS
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The name of this event is inspired by Áine’s frequent wearing of a myriad of adorable bows but is also about taking a bow, as this is a concert fundraiser.
Irene Moretto (“Mamma” of Áine) and Kaitlyn Waterson will perform musical selections for piano and voice centered around the wondrous and awe-filled experiences of infancy, childhood, and motherhood. Selections will include Robert Schumann’s Scenes from Childhood as well as vocal selections by Francis Poulenc, Eric Whitacre, Amy Beach and more! All ages are welcome!
This program was inspired by Irene’s daughter, Áine Mirella, born on August 22, 2024, who has Prader-Willi Syndrome. It is our hope to raise awareness for PWS and support funding towards research for PWS, but to also let people know about Áine as a child of joy.
A Prader -Willi Syndrome-friendly reception will follow the concert as a chance to reflect on the music heard, meet each other, and celebrate Áine Mirella and all of our PWS community.
Perry A. Zirkel has written more than 1,500 publications on various aspects of school law, with an emphasis on legal issues in special education. He writes a regular column for NAESP’s Principal magazine and NASP’s Communiqué newsletter, and he did so previously for Phi Delta Kappan and Teaching Exceptional Children.
Jennifer Bolander has been serving as a Special Education Specialist for PWSA (USA) since October of 2015. She is a graduate of John Carroll University and lives in Ohio with her husband Brad and daughters Kate (17), and Sophia (13) who was born with PWS.
Dr. Amy McTighe is the PWS Program Manager and Inpatient Teacher at the Center for Prader-Willi Syndrome at the Children’s Institute of Pittsburgh. She graduated from Duquesne University receiving her Bachelor’s and Master’s degree in Education with a focus on elementary education, special education, and language arts.
Evan has worked with the Prader-Willi Syndrome Association (USA) since 2007 primarily as a Crisis Intervention and Family Support Counselor. Evans works with parents and schools to foster strong collaborative relationships and appropriate educational environments for students with PWS.
Staci Zimmerman works for Prader-Willi Syndrome Association of Colorado as an Individualized Education Program (IEP) consultant. Staci collaborates with the PWS multi-disciplinary clinic at the Children’s Hospital in Denver supporting families and school districts around the United States with their child’s Individual Educational Plan.
Founded in 2001, SDLC is a non-profit legal services organization dedicated to protecting and advancing the legal rights of people with disabilities throughout the South. It partners with the Southern Poverty Law Center, Protection and Advocacy (P&A) programs, Legal Services Corporations (LSC) and disability organizations on major, systemic disability rights issues involving the Individuals with Disabilities Education Act (IDEA), Americans with Disabilities Act (ADA), and the federal Medicaid Act. Recently in November 2014, Jim retired.