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Ask Nurse Lynn

Ask Nurse Lynn, PWS, Medical PWS

Do you have a non-emergency medical question about Prader-Willi syndrome (PWS)? Do you have a non-urgent medical question that keeps coming up, but you forget to ask every time you’re at the doctor? Perhaps your question applies to numerous families who will benefit from hearing the answer.

Now you can “Ask Nurse Lynn,” PWSA | USA’s very own PWS Nurse. 

Lynn Garrick, MSN, RN, is the mother of 5 children, including her youngest son, who has PWS. In addition to her work with PWSA | USA, she has been the Nurse and Program Director with AME Community Services, Inc., a residential provider serving adults and children with Prader-Willi syndrome, since 2007. She is also a board member of IPWSO, their professional providers and caregivers board, and the Minnesota PWS chapter. PWSA | USA has been a significant resource since the birth of her son, and she is honored to help the community through her personal and professional knowledge.

How it works

Please submit your non-emergency medical questions to the form below or email questions to communications@pwsausa.org with the subject line Attn: Ask Nurse Lynn. We will then send your question to Nurse Lynn. Lynn’s response will be posted anonymously on our social media platforms, as well as sent to you via email. Please keep questions appropriate for an all-ages social media audience.

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Affecting Sleep with PWS

Affecting Sleep with PWS

Question: Female, 22 years old, Deletion subtype My daughter is not sleeping…day or night. She sleeps maybe 2 hours at night and no naps. That means I don’t sleep. We have tried OTC and Ambien, and they don’t work. We need help, I am emotionally and physically exhausted. I will reach out to her psychiatrist […]

Ask Nurse Lynn: Nicotine Addiction in PWS

Ask Nurse Lynn: Nicotine Addiction in PWS

Question: Male, 43 years old, Deletion subtype Our 43-year-old PWS son has become addicted to nicotine which has become more important than food. He knows he will be fed but we restrict his access to vaping (his favorite) which leads him to all kinds of ways of getting it out of our control. So far, […]

Ask Nurse Lynn: Glucose Monitoring

Ask Nurse Lynn: Glucose Monitoring

Question: Male, 23 years old, unknown subtype I have PWS. I’m 23, 5’7″. I do not have diabetes, but my grandfather and dad do. I was wondering what my blood sugar should be every day. I just got a glucose monitor so I want to make sure I’m doing good. I do workout every single […]

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