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Ask Nurse Lynn

Ask Nurse Lynn, PWS, Medical PWS

Do you have a non-emergency medical question about Prader-Willi syndrome (PWS)? Do you have a non-urgent medical question that keeps coming up, but you forget to ask every time you’re at the doctor? Perhaps your question applies to numerous families who will benefit from hearing the answer.

Now you can “Ask Nurse Lynn,” PWSA | USA’s very own PWS Nurse. 

Lynn Garrick, MSN, RN, is the mother of 5 children, including her youngest son, who has PWS. In addition to her work with PWSA | USA, she has been the Nurse and Program Director with AME Community Services, Inc., a residential provider serving adults and children with Prader-Willi syndrome, since 2007. She is also a board member of IPWSO, their professional providers and caregivers board, and the Minnesota PWS chapter. PWSA | USA has been a significant resource since the birth of her son, and she is honored to help the community through her personal and professional knowledge.

How it works

Please submit your non-emergency medical questions to the form below or email questions to communications@pwsausa.org with the subject line Attn: Ask Nurse Lynn. We will then send your question to Nurse Lynn. Lynn’s response will be posted anonymously on our social media platforms, as well as sent to you via email. Please keep questions appropriate for an all-ages social media audience.

VISIT OUR BLOG

Ask Nurse Lynn: Colon Cancer Screening, Why and How

Ask Nurse Lynn: Colon Cancer Screening, Why and How

Question: Female, 67 years old, Deletion subtype My sister with PWS (very high functioning) is scheduled for her first colonoscopy. It is just routine and there is no family history of colorectal cancer. Is this procedure absolutely necessary? Any additional advice or recommendations if the procedure is necessary. Nurse Lynn’s Response: Routine colon cancer screening […]

Ask Nurse Lynn: Bowel Blockage, Edema, and Hospital Stay

Ask Nurse Lynn: Bowel Blockage, Edema, and Hospital Stay

Question: Female, 54 years old, unknown subtype My sister was recently in the hospital for CHF, low O2 and heart rate, and an obstruction in her stomach. She was placed on a NG tube for several days to allow her stomach to decompress. She is now at a rehab center. She is battling huge blisters […]

Ask Nurse Lynn: Picking Compulsion and Genetic Subtypes

Ask Nurse Lynn: Picking Compulsion and Genetic Subtypes

Question: Male, 17 years old, Deletion Subtype Nurse Lynn,Can rectum picking be a genetic condition?I’m aware of three instances of unusual behavior involving the rectum. Nurse Lynn’s Response: Rectal picking in individuals with PWS is not considered genetic in the traditional sense, meaning it is not directly caused by inherited genes specific to that behavior. […]

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