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Ask Nurse Lynn

Ask Nurse Lynn, PWS, Medical PWS

Do you have a non-emergency medical question about Prader-Willi syndrome (PWS)? Do you have a non-urgent medical question that keeps coming up, but you forget to ask every time you’re at the doctor? Perhaps your question applies to numerous families who will benefit from hearing the answer.

Now you can “Ask Nurse Lynn,” PWSA | USA’s very own PWS Nurse. 

Lynn Garrick, MSN, RN, is the mother of 5 children, including her youngest son, who has PWS. In addition to her work with PWSA | USA, she has been the Nurse and Program Director with AME Community Services, Inc., a residential provider serving adults and children with Prader-Willi syndrome, since 2007. She is also a board member of IPWSO, their professional providers and caregivers board, and the Minnesota PWS chapter. PWSA | USA has been a significant resource since the birth of her son, and she is honored to help the community through her personal and professional knowledge.

How it works

Please submit your non-emergency medical questions to the form below or email questions to communications@pwsausa.org with the subject line Attn: Ask Nurse Lynn. We will then send your question to Nurse Lynn. Lynn’s response will be posted anonymously on our social media platforms, as well as sent to you via email. Please keep questions appropriate for an all-ages social media audience.

VISIT OUR BLOG

Ask Nurse Lynn: Leptin and Hyperphagia

Ask Nurse Lynn: Leptin and Hyperphagia

Question: Male, 36 years old, Deletion It was suggested to me by a doctor (not a PWS specialist) that those with PWS are deficient in the hormone leptin, and that replacing it could be an alternative way of helping with hyperphagia. Have you heard of leptin supplement as a treatment for hyperphagia? Nurse Lynn’s Response: […]

Ask Nurse Lynn: Risks of GLP-1 Medications

Ask Nurse Lynn: Risks of GLP-1 Medications

Question: Female, 40 years old, unknown subtype My daughter’s GP, and she herself, want to try Mounjaro injections for 6 months. She will be closely monitored by her nurse, her GP, her care team and family. She currently does not appear to have issues with gastroparesis but I want to prevent them by changing her […]

Ask Nurse Lynn: Ocular Issues and Eye Patching

Ask Nurse Lynn: Ocular Issues and Eye Patching

Question: Male, 15 months old, UPD subtype My son has esotropia and amblyopia primarily affecting his right eye but intermittently seen in his left eye as well. Surgical correction has been discussed and currently we have been instructed to patch his dominant eye (left) for two hours daily. We would like to pursue the interventions […]

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