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Ask Nurse Lynn

Ask Nurse Lynn, PWS, Medical PWS

Do you have a non-emergency medical question about Prader-Willi syndrome (PWS)? Do you have a non-urgent medical question that keeps coming up, but you forget to ask every time you’re at the doctor? Perhaps your question applies to numerous families who will benefit from hearing the answer.

Now you can “Ask Nurse Lynn,” PWSA | USA’s very own PWS Nurse. 

Lynn Garrick, MSN, RN, is the mother of 5 children, including her youngest son, who has PWS. In addition to her work with PWSA | USA, she has been the Nurse and Program Director with AME Community Services, Inc., a residential provider serving adults and children with Prader-Willi syndrome, since 2007. She is also a board member of IPWSO, their professional providers and caregivers board, and the Minnesota PWS chapter. PWSA | USA has been a significant resource since the birth of her son, and she is honored to help the community through her personal and professional knowledge.

How it works

Please submit your non-emergency medical questions to the form below or email questions to communications@pwsausa.org with the subject line Attn: Ask Nurse Lynn. We will then send your question to Nurse Lynn. Lynn’s response will be posted anonymously on our social media platforms, as well as sent to you via email. Please keep questions appropriate for an all-ages social media audience.

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Ask Nurse Lynn: Osteoporosis, Calcium, Vitamin D

Ask Nurse Lynn: Osteoporosis, Calcium, Vitamin D

Question: Female, 42 years old, UPD subtype My question is about treatment for osteoporosis. My sister, to my knowledge, has never had any hormone replacement. She is obese, BMI 38, and the only abnormal lab done by her gynecologist was testosterone, which was “below the technical range of the assay.” Her vitamin D levels are […]

Ask Nurse Lynn: Anemia and Iron Supplementation

Ask Nurse Lynn: Anemia and Iron Supplementation

Question: Female, 22 years old, unknown subtype Hello, my daughter has severe rectal picking issues to the point she is anemic. Got it under control in June 2023. Latest labs show anemia Ferritin at 6 Iron total at 13 hemoglobin at 11.2…doc said increase iron supplement to 325mg. My concern is it’s a new doc […]

Ask Nurse Lynn: hCG and Hypogonadism

Ask Nurse Lynn: hCG and Hypogonadism

Question: Male, 8 months old, unknown subtype We want to give hCG injections to our son, not just to avoid the surgery but for future benefits as well. His endocrinologist and urologist refused to give hCG, even after requesting so many times. I’m from the UK, and the NHS (National Health Service) have stopped giving […]

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