13 Year Old with PWS Will Be On a Popular TV Show!
We have exciting news for you all! On Monday, June 27th, Jack Lindsey who is 13 years old and has PWS will be on a popular TV show on the sportsman channel at 6pm CST. The opening episode features Jack hunting and killing a buck with his bow. The air times are as followed: Mon....
New Webinar DVD and Publication
Must-Have’s For Every PWS Family! Below are two wonderful resources PWSA (USA) is offering to our amazing community. Learn more about them below. Essential Early Childhood Behavior Management Strategies Three weeks ago, Lisa Graziano, MA, LMFT, presented a webinar entitled, Essential Early Childhood Behavior Management Strategies. Parents found it very helpful in understanding behavior...
Book Now Available through PWSA (USA)
Prader-Willi Syndrome : How Parents and Professionals Struggled and Coped and Made Genetic History By: John Hernandez-Storr Now available through PWSA (USA) — this amazing 256 page book gives never-before-told historical facts on the evolution of the medical world working to understand Prader-Willi syndrome (PWS) entwined with intimate, personal stories of the original PWSA (USA) pioneers....
Research Announcement: Report on the Zafgen Meetings
Due to the results of the phase 3 clinical trial on the Zafgen drug beloranib, a meeting was recently held in Miami to review the data and meet with thrombosis experts. This was followed up by a meeting with PWS caregivers, many of whom had children on the clinical trial. As reported in the webinar...