Book Now Available through PWSA (USA)

Prader-Willi Syndrome : How Parents and Professionals Struggled and Coped and Made Genetic History By: John Hernandez-Storr Now available through PWSA (USA) — this amazing 256 page book gives never-before-told historical facts on the evolution of the medical world working to understand Prader-Willi syndrome (PWS) entwined with intimate, personal stories of the original PWSA (USA) pioneers....

PWSA (USA) and Shriner Hospital Partnership

I am so pleased and privileged to announce the new partnership between PWSA (USA) and Shriner’s Hospitals for Children.  This relationship is exciting and, indeed, hopeful. During the 2015 PWSA (USA) National Conference I was fortunate to be introduced to Ms. Cheryl Stauss, former First Lady of Shriner’s International.  Cheryl served as First Lady of...

Upcoming Events

  1. Mattyofit’s Miami Endurance Run

    September 25
  2. 12th Annual Hunter Lens Golf Tournament

    October 2 @ 1:00 pm - 5:00 pm
  3. Answers for Audrey

    October 22 @ 6:30 pm - 9:00 pm
  4. Hot Stove Dinner – Save the Date!

    March 26, 2022