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Prader-Willi Syndrome Association (USA)

Donor-Privacy Policy

All information concerning donors or prospective donors,  including their names, addresses and telephone numbers, the names of their beneficiaries, the amount of their gifts, etc., shall be kept strictly confidential by Prader-Willi Syndrome Association (USA), its staff and volunteers, unless permission is obtained from donors to release such information.

The Prader-Willi Syndrome Association (USA) uses donors’ information to understand their interests in our mission and to update them on the organization’s plans and activities.  It is shared with staff, board members, volunteers and consultants only on a “need-to-know” basis.

Prader-Willi Syndrome Association (USA) does not sell, lease, or rent donor names to other organizations or vendors.  If you have any comments or questions about the Prader-Willi Syndrome Association (USA) donor-privacy policy, please email info@pwsausa.org or call 800-926-4797.

PWSA (USA) 2014 990 Form, Click Here

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