To support, educate and advocate for persons with Prader-Willi Syndrome, their families and professionals in meeting the challenges of this disability.
• All infants born with Prader-Willi syndrome will receive a diagnosis within their first year of life so that they can receive early intervention services; treatment for health conditions; and begin a life that promotes health, wellness and success for them and their families.
• All children and adults who have Prader-Willi syndrome will successfully play, learn, work and live in their communities with the knowledge and understanding of their disability so that the appropriate educational, environmental and behavioral supports are in place that allow them to have a positive quality of life and live as independent as possible.
• All persons with Prader-Willi syndrome, parents, care givers and others who support and assist persons with Prader-Willi syndrome will receive the necessary support, education and tools needed to become informed advocates and educators so the proper supports are in place that allow them to have a positive quality of life and live as independent as possible.
Our Work Includes
• Providing awareness and knowledge of Prader-Willi syndrome to all who reside in the State of Wisconsin.
• Connecting families and professionals to resources in their communities and providing consultative and educational services as needed.
• Working collaboratively with other organizations and professionals to advance our knowledge and understanding of Prader-Willi syndrome through various research endeavors.
• Advocating for persons with PWS by participating in residential, educational and other planning and team meetings.
• Providing social opportunities to enrich the lives of people with Prader-Willi syndrome.
• Organizing parent and professional workshops and training.
Our Board Members
Nicolette Weisensel, MD
Volunteer Training Coordinator & Consultant