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The Night we told Ryan he has Prader-Willi Syndrome

When is it the right time? At what age? At what cognitive level?  Will he even understand?  Will it make him more anxious? (Because EVERYTHING does.) Will he just perseverate on it and talk about it over and over and over?  Or will it bring relief—as in “oh, now I understand why I talk about […]

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Important Medical Growth Charts

PWSA (USA) Growth Charts Now Available! A child’s growth is the single best indicator of their health – important data for every pediatric appointment. For children with Prader-Willi Syndrome, the pattern is not typical, and interpreting each height and weight can create questions and worries for parents and professionals. With the support of PWSA (USA) […]

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Only 36 hours are left!

That’s right, you can still make a tax-deductible gift in 2016, and have it tripled, thanks to the generosity of a group of donors who will double match all donations through midnight, December 31 (up to $40,000 total). Your $100 gift immediately becomes $300 and your $250 donation immediately becomes $750! Your gift now will Save and Transform Lives in 2017. Help […]

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PWSA (USA) Approves Grant

We are pleased to announce that PWSA (USA) has approved the funding of an important grant: The Effect Of Growth Hormone Substitution On Sleep Disordered Breathing In Young Children With Prader-Willi Syndrome. The researchers have committed that the results will be in a report that could be helpful with physicians and private/ public insurance companies. […]

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Triple Your Donation By December 31st!

Between now and the end of 2016, your contribution to PWSA (USA) Angel Drive will be double matchedby a generous group of donors (up to $40,000 total). That means your $100 donation will immediately triple to $300, and $250 becomes $750! But only if you donate before time runs out. Your tax-deductible donation will allow us […]

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Clint Hurdle’s exclusive online auction to benefit PWSA (USA)

We are pleased to be partnering again with Clint Hurdle & Total Sports Enterprises in an Online Memorabilia Auction that will include many sports items from the Major League Baseball team the Pittsburgh Pirates and Clint Hurdle. The auction will end, Monday, December 19th at 9:00PM. We are so grateful to Clint  and Total Sports Enterprises for their continued […]

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Warning – Medication combinations may fatally impair breathing in PWS!

We want to remind parents that impaired breathing is a leading cause of death in people with PWS. After the recent unexpected death at home of a young person with PWS, we want to alert parents and professionals to the potential risk factors with combinations of medications, especially after surgery. PWSA (USA) continues to collect […]

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Help Save The Life Of A Loved One With PWS

For 19 years the PWSA (USA) Angel Drive has raised critical funds to meet the needs of PWS families. Demands for our medical, school, behavior, residential placement, new diagnosis and other family support activities continue to explode. We are serving more PWS than we ever have during our 41-year history! What are parents of loved […]

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