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Introducing PWSA (USA)’s Phone App!

We are proud to announce our free PWSA (USA) phone app is now live and available on all mobile devices! In today’s world, the way we communicate and learn is through our mobile devices. We search, read, send emails, play and even work while using these devices. It has become a part of us. This […]

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PWSA (USA) and Shriner Hospital Partnership

I am so pleased and privileged to announce the new partnership between PWSA (USA) and Shriner’s Hospitals for Children.  This relationship is exciting and, indeed, hopeful. During the 2015 PWSA (USA) National Conference I was fortunate to be introduced to Ms. Cheryl Stauss, former First Lady of Shriner’s International.  Cheryl served as First Lady of […]

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Help Us Learn More: Survey on Dangerous Condition in PWS

Survey: Vascular Blood Clots, Deep Vein Thrombosis (DVT) and/or Thrombosis in Prader-Willi Syndrome Our recent review of causes of death at PWSA (USA) has increased our awareness of the risk of death due to blood clots to the lungs/ pulmonary embolism’s(PE’s) in Prader-Willi syndrome. Additionally, there have been two PE sudden deaths during a recent […]

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PWSA (USA) Announces A New Service For Our Members!

Introducing Our New Webinar Series It has been two months since our PWSA (USA) National conference in Orlando and we have heard from so many of you regarding the excellent quality and quantity of the presentations. We are so glad you enjoyed it and have been looking for a way to expand and share the […]

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PWSA (USA) Supports Two New Important Studies!

Calling all fathers! A study on the role of PWS male caregivers has been approved by PWSA (USA). Dr. Leon Caldwell has been awarded a grant to do a study on the needs and issues of PWS fathers and other male caregivers. The purpose of this study is to learn about the coping and parenting […]

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Mayim Bialik Spreading Awareness For Prader-Willi Syndrome and PWSA (USA)

We would like to thank Mayim Bialik  from the hit comedy TV show “The Big Bang Theory” for her wonderful blog article she wrote about Prader-Willi syndrome, PWSA (USA) and this years Angel Drive on her website GrokNation. It begins with a community! Let’s Save and Transform Lives! Click the link below to read the full […]

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Two New Prader-Willi Syndrome Films

PWSAI (Ireland) has released a new film that was produced in cooperation with IPWSO and PWSA (USA). The film is Therapeutic Interventions for the Young Child with Prader-Willi Syndrome presented by Janice Agarwal, CNDT-PT The film was funded from the proceeds of the Galway Cycle 2014. We are very grateful to Janice for her participation […]

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New Matching Gift Opportunity – Angel Drive

Reminder – It is not too late to donate towards #GivingTuesday and have your donation matched! Since we announced our $7,000 match for today, an additional donor has stepped forward and added $3,000 to our matching fund for a total of $10,000. He has asked that we extend the matching period through this week so […]

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