Empowering Individuals

Supporting Families

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What we do

Advocacy & Awareness

PWSA | USA drives positive change for Prader-Willi community and empowers its members with tools like the Public Policy Action Center.

Family Support

PWSA | USA provides resources to support PWS individuals, families, and caregivers and educates medical professionals about best practices.


PWSA | USA collaborates with pharmaceutical companies, research universities, and other partners to fast-track high impact research for more effective PWS treatment.

Events & Fundraisers

Upcoming Events

March 2023
Mar 25
25 March 2023
Anna Maria Island, FL United States

PURCHASE YOUR TICKET TO THE 9TH ANNUAL CLINT HURDLE HOT STOVE DINNER HERE Get ready for some fun in the sun! For those interested in attending the 2023 Clint Hurdle Hot Stove Dinner, you can now make your hotel reservations in our room block HERE. The event will be held Saturday, March 25, 2023 at […]

June 2023
Jun 21
21 June 2023

We invite you to join us June 21 – June 24, 2023, in sunny Orlando, Florida at the Hilton Orlando Buena Vista Palace. PWSA | USA’s Convention will provide exciting opportunities to learn, connect (and reconnect), and hear about the latest PWS research. Taking place in Orlando, FL on June 21-24, 2023, this world-class event will […]

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