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X-WR-CALDESC:Events for Prader-Willi Syndrome Association | USA
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DTSTART;TZID=America/New_York:20250503T090000
DTEND;TZID=America/New_York:20250503T090000
DTSTAMP:20260418T045117
CREATED:20250127T145246Z
LAST-MODIFIED:20250127T145246Z
UID:56203-1746262800-1746262800@www.pwsausa.org
SUMMARY:NC Hope United 5K & Family Fun Run
DESCRIPTION:When: Saturday\, May 3\, 2025 | 9:00 AM\nWhere: Greater Wilson Rotary Park (1901 Branch St NW\, Wilson\, NC 27893) \nCLICK HERE TO REGISTER!\n \nEarly bird ticket pricing ends March 20th! \nRegister to ATTEND or SPONSOR the NC Hope United 5K & Family Fun Run in support of individuals living with Prader-Willi Syndrome! Proceeds from this event will benefit PWSA | USA’s Advocacy\, Family Support\, and Research programs to find a treatment for PWS.
URL:https://www.pwsausa.org/event/nc-hope-united-5k-family-fun-run/
LOCATION:Greater Wilson Rotary Park\, 1901 Branch St NW\, Wilson\, NC\, 27893\, United States
CATEGORIES:North Carolina
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250501
DTEND;VALUE=DATE:20250601
DTSTAMP:20260418T045117
CREATED:20250312T183158Z
LAST-MODIFIED:20250312T183158Z
UID:57457-1746057600-1748735999@www.pwsausa.org
SUMMARY:PWS Awareness Month
DESCRIPTION:Throughout May\, Help Shine a Light on Prader-Willi Syndrome Awareness Month! \nThe month of May is an important time for our rare disease community because it’s recognized as Prader-Willi Syndrome Awareness Month. While advocacy efforts\, the fight for research advancements\, and celebration of our loved ones is important 365 days a year\, the 31 days in May offer an opportunity to really show off our PWS pride. Throughout this email\, we share several different ways YOU can make an impact! \nPWSA | USA has created several graphics designed to help you raise awareness on social media and in your community. From profile photos to flyers and a printable yard sign\, this toolkit equips you with everything you need to make a difference. Let’s unite to educate others about PWS and show our support for those living with this rare genetic disorder. Together\, we can make a meaningful impact and foster greater understanding and acceptance. Visit PWSA | USA’s website by CLICKING HERE to access the toolkit and start spreading awareness! \nOur Spotlight on Hope series strives to share and celebrate the successes of our loved ones. No success is too small! Whether they took their first steps\, had a great time at the school dance\, made a shot in a basketball game\, or are working towards a goal\, we want to celebrate it all. If you’d like to honor your loved one and share their success story with the PWS community\, please fill out our Spotlight on Hope form at https://www.pwsausa.org/get-involved/share-your-story/. We’re looking forward to celebrating with you!
URL:https://www.pwsausa.org/event/pws-awareness-month/
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250501
DTEND;VALUE=DATE:20250601
DTSTAMP:20260418T045117
CREATED:20250312T181720Z
LAST-MODIFIED:20250312T181720Z
UID:57455-1746057600-1748735999@www.pwsausa.org
SUMMARY:United We Brunch
DESCRIPTION:We are excited to introduce the United We Brunch initiative\, a nationwide effort designed to bring people together to connect\, share experiences\, gain the resources\, and support our community needs. United We Brunch is about fostering hope – one brunch\, one state\, and one family at a time – uniting communities and creating a ripple effect of awareness and compassion across the country. \nAnyone can host a United We Brunch event! It’s easy and can be as casual or fancy as you’d like. From picking up muffins and putting on a pot of coffee to catering a high tea and arranging flowers\, your time and imagination are the only limits. \nYou can host at home\, partner with a family member\, or even reserve a room at your favorite brunch spot. It’s all up to you! \nWith your help\, we can grow this initiative so that every May\, during PWS Awareness Month\, there will be a wave of support that increases in momentum every year. Imagine knowing that every May\, nationwide\, new groups are gathering to help shine a light on PWS for all of us. It starts here\, it starts now\, it starts with you. \nCLICK HERE TO GET STARTED \nCLICK HERE TO DOWNLOAD THE UNITED WE BRUNCH TOOLKIT
URL:https://www.pwsausa.org/event/united-we-brunch/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250426T120000
DTEND;TZID=America/New_York:20250426T133000
DTSTAMP:20260418T045117
CREATED:20250318T190821Z
LAST-MODIFIED:20250318T190821Z
UID:57561-1745668800-1745674200@www.pwsausa.org
SUMMARY:PWS Symposium: Recognizing and Addressing Hyperphagia Early in Prader-Willi Syndrome
DESCRIPTION:CLICK HERE TO REGISTER \nJoin PWSA | USA\, The Endocrine Society\, and Medscape Education for this live symposium on Prader Willi syndrome (PWS) where experts will explore the huge burden that hyperphagia represents for patients with PWS\, their families\, and their caregivers. They will delve into the pathophysiology and complications of hyperphagia and look to the future in a discussion around the current and emerging treatment options for hyperphagia in PWS. By incorporating patient case examples and the latest data\, the speakers will exchange ideas around best practices to ensure improved quality of life for patients with PWS and those around them. There will be the opportunity for attendees to ask questions of the experts during this symposium. This educational activity is intended for an audience of pediatricians\, endocrinologists\, psychiatrists\, geneticists\, nurse practitioners\, physician assistants\, nurses\, and other clinicians who care for patients with PWS in the United States. \nSpeakers Include\nShawn McCandless\, MD\, Chair\, Department of Genetics and Metabolism (Children’s Hospital Colorado)\, Professor and Section Head\, Genetics and Metabolism (University of Colorado Anschutz Medical Campus)\nParisa Salehi\, MD\, Associate Professor\, Division of Endocrinology & Diabetes\, Clinical Director\, Prader-Willi Syndrome Clinic (Seattle Children’s)\nDeepan Singh\, MD\, ​Child\, Adolescent\, and Adult Psychiatrist\, ​Vice-Chair of Ambulatory Psychiatry Services (Maimonides Medical Centre) \nAdditional Details\nIn support of improving patient care\, Medscape\, LLC is jointly accredited with commendation by the Accreditation Council for Continuing Medical Education (ACCME)\, the Accreditation Council for Pharmacy Education (ACPE)\, and the American Nurses Credentialing Center (ANCC)\, to provide continuing education for the healthcare team. \nFor Physicians\nMedscape\, LLC designates this live activity for a maximum of 1.0 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity. \nFor Nurses\nAwarded ​1.0​ contact hour(s) of nursing continuing professional development for RNs and APNs. \nSupported by an independent educational grant from Soleno Therapeutics Inc.
URL:https://www.pwsausa.org/event/pws-symposium-recognizing-and-addressing-hyperphagia-early-in-prader-willi-syndrome/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250422T210000
DTEND;TZID=America/New_York:20250422T220000
DTSTAMP:20260418T045117
CREATED:20250417T204729Z
LAST-MODIFIED:20250417T204729Z
UID:58187-1745355600-1745359200@www.pwsausa.org
SUMMARY:PWS Community Town Hall: Sharing Experiences with VYKAT XR
DESCRIPTION:CLICK HERE TO REGISTER \nWhen: Tuesday\, April 22\, 2025 | 9:00 PM ET / 6:00 PM PT \n\nPWS families and caregivers are invited to a virtual town hall focused on VYKAT XR\, the first FDA-approved medication for treating hyperphagia in individuals with Prader-Willi syndrome (PWS) ages 4 and older. This informal\, community-led town hall is a no-host forum designed for families and caregivers to share their personal experiences with VYKAT XR\, ask questions\, and learn from one another.\n\n\n\nPlease note: This session is intended for peer-to-peer discussion. Medical advice will not be provided.\n\n\n\nThis town hall is intended for U.S.-based caregivers of individuals with Prader-Willi syndrome. PWSA | USA and FPWR will verify all registrants to confirm caregiver status to ensure a safe and supportive environment. Registration will only be approved once verification is complete.\n\n\n\nFor the privacy of our attendees\, the town hall will not be recorded.
URL:https://www.pwsausa.org/event/pws-community-town-hall-sharing-experiences-with-vykat-xr/
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2025/04/PWS-Community-Town-Hall-1200x630-1-png.webp
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250416T121500
DTEND;TZID=America/New_York:20250416T121500
DTSTAMP:20260418T045117
CREATED:20250331T200749Z
LAST-MODIFIED:20250331T200749Z
UID:57809-1744805700-1744805700@www.pwsausa.org
SUMMARY:Free Live Webinar: Understanding VYKAT XR – The First FDA-Approved Treatment for Hyperphagia in PWS
DESCRIPTION:Date: Wednesday\, April 16\, 2025Time: 9:15 AM PT | 12:15 PM ETLocation: Virtual via ZOOM\nFree for anyone to attend \nREGISTER HERE \nThe Prader-Willi syndrome (PWS) community has reached a historic milestone – VYKAT XR (formerly known as DCCR in clinical trials) is now FDA-approved as the first-ever treatment for hyperphagia in PWS. To help families\, caregivers\, and healthcare providers understand what this means\, Soleno Therapeutics and Medlive\, in partnership with PWSA | USA and FPWR\, are hosting a free\, live webinar featuring expert speakers\, real-life caregiver experiences\, and important information about VYKAT XR. \nWhat You’ll Learn\n– How to recognize hyperphagia in people living with PWS\n– How VYKAT XR works to manage hyperphagia\n– A caregiver’s personal experience with VYKAT XR\n– How to get started with VYKAT XR \nFeatured Speakers\n– Kathryn Obrynba\, MD – Nationwide Children’s Hospital\n– Deahl Wilson – Caring for a loved one with PWS\n– Stacy Ward – CEO\, Prader-Willi Syndrome Association | USA\n– Susan Hedstrom – Executive Director\, Foundation for Prader-Willi Research\n– Brennen Fields – Senior Director\, Patient Access Solutions\, Soleno Therapeutics \nVYKAT XR’s FDA approval on March 26\, 2025\, marks a significant step forward in addressing one of the most challenging symptoms of PWS. This webinar is your opportunity to gain valuable insights\, ask questions\, and hear directly from experts and caregivers about what this treatment means for individuals with PWS and their families. \nRegister Today!\nDon’t miss out – sign up now to secure your spot. If you are unable to attend the live session\, a recording will be available: REGISTER HERE \nYou can also download a flyer at the button below and share it with your community to help spread the word: DOWNLOAD HERE
URL:https://www.pwsausa.org/event/free-live-webinar-understanding-vykat-xr-the-first-fda-approved-treatment-for-hyperphagia-in-pws/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250405T180000
DTEND;TZID=America/New_York:20250405T180000
DTSTAMP:20260418T045117
CREATED:20250102T163934Z
LAST-MODIFIED:20250305T152026Z
UID:55667-1743876000-1743876000@www.pwsausa.org
SUMMARY:Zahra's Night of Light
DESCRIPTION:When: Saturday\, April 5\, 2025 | 6:00 PM\nWhere: Historical Hall (608 Old Post Road\, Bedford NY)\nCLICK HERE TO REGISTER AND BECOME AN EVENT SPONSOR \nJoin us for the inaugural Zahra’s Night of Light at the Historic Hall in Bedford\, NY! This community event brings us together to support children like Zahra\, living with Prader-Willi Syndrome. Enjoy an evening filled with entertainment\, food and drinks\, a silent auction\, and more. \nEvery dollar raised will go directly to the Prader-Willi Syndrome Association (PWSA | USA) to fund advocacy\, family support\, and vital research to find a treatment for PWS. \nPWS is a rare genetic condition that occurs in 1:15\,000-30\,000 live births and begins with low muscle tone\, feeding difficulties\, and delayed development. By childhood\, it evolves into a relentless hunger that dominates daily life in addition to behavioral and academic challenges. For Zahra\, this syndrome is just one part of who she is\, but it significantly impacts her and our family’s world\, now and forever. \nThere’s no cure or treatments\, but with your support\, we can give her—and others—a chance at independence and freedom from hunger. \nJoin us on April 5th for an unforgettable evening of hope and impact!
URL:https://www.pwsausa.org/event/zahras-night-of-light/
LOCATION:Historical Hall\, 608 Old Post Rd\, Bedford\, NY\, 10506\, United States
CATEGORIES:New York
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250322T170000
DTEND;TZID=America/New_York:20250322T213000
DTSTAMP:20260418T045117
CREATED:20241226T152017Z
LAST-MODIFIED:20241226T152017Z
UID:55588-1742662800-1742679000@www.pwsausa.org
SUMMARY:2025 Clint Hurdle Hot Stove Dinner
DESCRIPTION:Sip\, Savor\, Support!\nJoin Clint and Karla Hurdle on Saturday\, March 22\, 2025\, to support PWSA | USA. \nEnjoy the 11th Annual Hot Stove Dinner at this outdoor event on the beautiful grounds of Bradenton Country Club\, Bradenton\, FL\, or virtually from anywhere. \nREGISTER HERE! \nEvent Schedule: \n5:00 PM EST – 6:00 PM EST | Island Treasure Reception (Guests registered for this limited attendance event may arrive at 4:45 PM EST) \nVirtual Event – 5:00 PM EST – 8:30 PM EST | All virtual guests will be sent a virtual event link on Wednesday\, March 19\, 2025. Please email Penny@ElevareFoundation.org in the event you do not receive your email by Thursday\, March 20\, 2025. Please check your spam folder as well. \nMain Event (General Admission) – 6:00 PM EST – 9:30 PM EST \nHighlights of the evening: \n\nInspirational stories of what Prader-Willi Syndrome Association | USA does every day!\nSilent Auction: Bid on exclusive items and experiences\, with all proceeds going towards PWS research and support programs\nGourmet Dinner: Enjoy a delectable meal while mingling with fellow supporters and advocates\nLive Entertainment\nRaffle\nCoconut Drop | Golf Ball Drop!
URL:https://www.pwsausa.org/event/2025-clint-hurdle-hot-stove-dinner/
LOCATION:Bradenton Country Club\, 4646 9th Ave W\, Bradenton\, Florida\, 34209
CATEGORIES:Florida
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250311T200000
DTEND;TZID=America/New_York:20250311T210000
DTSTAMP:20260418T045117
CREATED:20250307T150831Z
LAST-MODIFIED:20250307T150831Z
UID:57354-1741723200-1741726800@www.pwsausa.org
SUMMARY:Harmony Biosciences Webinar Opportunity
DESCRIPTION:We invite the PWS community to join us for a FREE and important webinar with Harmony Biosciences on Tuesday\, March 11\, 2025\, at 5:00 PM PST / 8:00 PM EST on Zoom! \nCLICK HERE TO REGISTER \nThis is your chance to: – Learn about the TEMPO Phase 3 clinical trial of pitolisant\, a potential treatment for excessive daytime sleepiness (EDS) and behavioral disturbances in PWS.\n– Find out where trial sites are located (ALL sites are now open and actively enrolling participants).– Ask your questions directly to the Harmony Biosciences team. \nWith the help of our community\, this groundbreaking treatment could move one step closer to FDA approval\, bringing hope and new options to those who need it most. \nDon’t miss this opportunity to be part of the future of PWS treatment! Click the button below to register. \nMark your calendar and spread the word!
URL:https://www.pwsausa.org/event/harmony-biosciences-webinar-opportunity/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250228T000000
DTEND;TZID=America/New_York:20250228T000000
DTSTAMP:20260418T045117
CREATED:20250212T223344Z
LAST-MODIFIED:20250212T223344Z
UID:56538-1740700800-1740700800@www.pwsausa.org
SUMMARY:Rare Disease Day 2025
DESCRIPTION:Rare but strong. Rare but resilient. Rare but never alone. \nThis Rare Disease Day (Friday\, February 28\, 2025)\, we’re standing with the Prader-Willi syndrome community and the 30 million Americans living with a rare disease. Whether you’re sharing your story\, spreading awareness\, or fundraising for a brighter future\, YOU can make a difference. \n\nDownload our “Media” and “15 Ways to Raise Awareness” toolkits with exclusive PWS-specific social media graphics\, advocacy tips\, and creative ways to get involved.\nLearn why Rare Disease Day matters and how Prader-Willi syndrome compares to other rare conditions.\nFind out why zebras are the official symbol of the rare disease community—and how you can show your stripes!\nSupport PWSA | USA to ensure families impacted by PWS have a strong\, united voice for the next 50 years.\n\nCLICK HERE TO EXPLORE OUR RARE DISEASE DAY HUB
URL:https://www.pwsausa.org/event/rare-disease-day-2025/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250201T173000
DTEND;TZID=America/New_York:20250201T173000
DTSTAMP:20260418T045117
CREATED:20250102T163351Z
LAST-MODIFIED:20250102T164017Z
UID:55663-1738431000-1738431000@www.pwsausa.org
SUMMARY:Diamonds & Denim 2025
DESCRIPTION:When: Saturday\, February 1\, 2025 | 5:30 pm\n\n\nWhere: Poe’s on the Hill\, Springfield\, IL\n\nCLICK HERE TO PURCHASE TICKETS \nJoin Team Esme for an Unforgettable Evening of Fun and Fundraising! \nGet ready for a night of delicious food\, lively dancing\, and exciting entertainment. DJ Chad Burton will keep the energy high throughout the evening. Explore our silent auction items\, available for browsing and bidding all night\, and don’t miss the live auction kicking off at 8 PM! \nDress to impress in your best “diamonds” or keep it relaxed in “denim”—either way\, you’re in for a fantastic time. \nEvent Details: \n\nTickets: $60 per person | $110 per couple\nDinner Options: Prime Rib or Cavatappi with Alfredo Chicken\nIncludes a decadent dessert buffet!\nDoors Open: 5 PM\n\nBring some cash for 50/50 draws\, raffles\, and other fun games. Mark your calendar and join us for an evening you won’t want to miss! \n\n\nWe’re raising funds for Prader-Willi Syndrome (PWS) research\, advocacy and family support\, inspired by Esme—our beautiful\, loving 6-year-old whose resilience shines despite countless challenges. \nPWS is a rare genetic condition that begins with low muscle tone\, feeding difficulties\, and delayed development in infancy. By childhood\, it evolves into a relentless hunger that dominates daily life. For Esme\, this syndrome is just one part of who she is\, but it significantly impacts her and our family’s world. \nWhile we cherish dreams for Esme’s future\, we also face fears of the insatiable appetite PWS brings. There’s no cure yet\, but with your support\, we can fund the research\, advocacy\, and family support resources to give her—and others—a chance at independence and freedom from hunger. \nJoin us on February 1st for an unforgettable evening of hope and impact!
URL:https://www.pwsausa.org/event/diamonds-denim-2025/
LOCATION:Poe’s on the Hill\, 295 E Andrew Rd\, Springfield\, IL\, 62707\, United States
CATEGORIES:Illinois
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2025/01/PWS-Event-Diamonds-and-Denim.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241119T200000
DTEND;TZID=America/New_York:20241119T210000
DTSTAMP:20260418T045117
CREATED:20241119T145711Z
LAST-MODIFIED:20241119T145722Z
UID:55218-1732046400-1732050000@www.pwsausa.org
SUMMARY:Family Support Webinar: Babysitter and Care Provider Training
DESCRIPTION:CLICK HERE TO REGISTER \nWhen: Tuesday\, November 19\, 2024 | 5 pm PST / 8 pm EST \nThis live webinar\, facilitated by Lisa Graziano\, M.A. LMFT\, will help your babysitter\, respite worker\, and even relatives better understand how to care for your child or adult more safely\, giving YOU greater opportunity to enjoy date nights\, self-care moments\, and even weekends away! The webinar underscores the need to follow parents care exactly and offers strategies to provide food security\, decrease arguing\, and increase cooperation.
URL:https://www.pwsausa.org/event/family-support-webinar-babysitter-and-care-provider-training/
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/11/FS-Webinar-IG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241111T170000
DTEND;TZID=America/New_York:20241111T180000
DTSTAMP:20260418T045117
CREATED:20240701T204003Z
LAST-MODIFIED:20241015T141911Z
UID:51990-1731344400-1731348000@www.pwsausa.org
SUMMARY:ECHO 4 PWS Webinar: Exercise Physiology
DESCRIPTION:Join PWSA | USA for our November ECHO 4 PWS Webinar\, Exercise Physiology with Dr. Daniela Rubin.  More details coming soon! \nREGISTER IN ADVANCE HERE \nPWSA | USA launched our Health Care Provider Project ECHO Series\, ECHO 4 PWS\, in 2023. We are proud to offer this opportunity to health care professionals who work with patients affected by Prader-Willi syndrome (PWS) and to be the first PWS organization to implement Project ECHO® in the United States.
URL:https://www.pwsausa.org/event/echo-4-pws-webinar-exercise-physiology/
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241101
DTEND;VALUE=DATE:20250101
DTSTAMP:20260418T045117
CREATED:20241027T231926Z
LAST-MODIFIED:20241027T231926Z
UID:54880-1730419200-1735689599@www.pwsausa.org
SUMMARY:2024 Angel Drive Campaign - Give the Gift of Hope
DESCRIPTION:CLICK HERE TO MAKE YOUR GIFT OF HOPE! \nAs we approach the end of 2024\, we are filled with gratitude for your unwavering support. This year has been a time of innovation and growth for the Prader-Willi Syndrome Association | USA (PWSA | USA)\, and it’s all thanks to your engagement and generosity \n\n\n\n\n\nSharing and Celebrating Our 2024 Achievements\n\n\n\n\n\nOur 2024 D.C. Fly-In saw 150 advocates participate in over 130 congressional meetings\, resulting in a letter of support for PWS signed by 27 elected officials.\nThe voice of individuals with PWS was amplified by the community’s historic Voice of the Patient Report and PWS Advocacy Coalition Petition to the FDA\, advocating for Soleno Therapeutics’ DCCR new drug application and future treatments\, AND the re-launch of our Adults-with-PWS Advisory Board.\nWe helped over 50 teens and adults living with PWS develop essential communication skills to better navigate relationships through our BOSS Program.\nWe launched the PWS United Podcast to share resources and stories\, fostering community connection. Our first-ever Residential Providers Conference brought together over 100 providers to improve care for individuals with PWS.\n\n\n\n\n\n\n\nLooking Ahead to 2025: Celebrating 50 Years of Impact\n\n\n\n\nAs we approach our 50th anniversary in 2025\, we reflect on our progress and renew our commitment to the PWS community. To advance this important work\, we need your support. \n\n\n\n\n\n\nJoin Our 2024 Angel Drive\n\n\n\n\nMake a gift to the 2024 Angel Drive before December 15th\, and you’ll be entered to win one of four fantastic prizes: an Apple Smart Watch\, a $300 Amazon Gift Card\, Custom Nike PWS Sneakers\, or a PWSA Swag Bag! \n\n\n\n\n\nBy giving your gift of HOPE\, you’ll help us remain a lifeline\, ensuring families can access vital resources\, from critical support services to advancing research\, advocacy\, and awareness. Your tax-deductible gift guarantees that PWSA | USA can continue providing hope\, 24/7/365. Thank you for being part of this journey and for your unwavering commitment to the PWS community.
URL:https://www.pwsausa.org/event/2024-angel-drive-campaign-give-the-gift-of-hope/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241024T120000
DTEND;TZID=America/New_York:20241024T130000
DTSTAMP:20260418T045117
CREATED:20240725T190951Z
LAST-MODIFIED:20241015T141524Z
UID:52642-1729771200-1729774800@www.pwsausa.org
SUMMARY:ECHO 4 PWS Webinar: Psychiatry and PWS with Dr. Deepan Singh
DESCRIPTION:Join PWSA | USA for our October ECHO 4 PWS Webinar\, Psychiatry and PWS with Deepan Singh\, MD\, on October 24\, 2024\, at 12:00 p.m. EST. More details coming soon! \nREGISTER IN ADVANCE HERE \nPWSA | USA launched our Health Care Provider Project ECHO Series\, ECHO 4 PWS\, in 2023. We are proud to offer this opportunity to health care professionals who work with patients affected by Prader-Willi syndrome (PWS) and to be the first PWS organization to implement Project ECHO® in the United States. \n 
URL:https://www.pwsausa.org/event/echo-4-pws-webinar-psychiatry-and-pws-with-dr-deepan-singh/
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/07/Military-family-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241012T190000
DTEND;TZID=America/New_York:20241012T190000
DTSTAMP:20260418T045117
CREATED:20240627T205140Z
LAST-MODIFIED:20241003T133242Z
UID:51935-1728759600-1728759600@www.pwsausa.org
SUMMARY:4th Annual Answers for Audrey Trivia Night
DESCRIPTION:Hosted by PWS Mom Michelle Spring \nPlease join us at the 4th Annual (Trivia) Answers for Audrey event on Saturday\, October 12th\, 2024 at the Incarnate Word Academy (2788 Normandy Dr\, Bel-Nor\, MO\, United States\, Missouri)! Doors open at 6:30 pm and trivia starts at 7:00 pm. \nOur daughter\, Audrey Rose\, was diagnosed with Prader-Willi Syndrome on December 19\, 2020. \nPrader-Willi Syndrome is a genetic disorder that affects a critical region of chromosome 15. PWS affects 1 in 15\,000 births. With the spectrum syndrome\, there is a risk of abnormal growth and body composition\, insatiable hunger\, obesity\, and intellectual disability. We do not know how and to what extent PWS symptoms will affect Auddie but we do know we want to help find treatments. Proceeds raised will be divided between the Spring Family medical needs and PWSA | USA\, a foundation that helped us in our darkest days and that is on the cutting edge of research\, medical trials\, and life-changing treatments. \nWe cannot thank you enough for your interest in our fundraising event! \nPlease contact Michelle or Michael with any interest or questions:\nEmail: AnswersForAudrey@gmail.com Phone : 636-634-5601 \nPlease note\, any donation made via the online platform is tax deductible. Donations made the night of the event will benefit the Spring Family directly and therefore are not tax deductible. Due to the nature of this event\, no refunds will be granted. \nREGISTER FOR THIS EVENT BY CLICKING HERE.
URL:https://www.pwsausa.org/event/4th-annual-answers-for-audrey-trivia-night/
LOCATION:Incarnate Word Academy\, 2788 Normandy Ave.\, St. Louis\, MO\, 63121\, United States
CATEGORIES:Missouri
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/06/Save-The-Date-Trivia-Night-Aud-Pic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241012T170000
DTEND;TZID=America/New_York:20241012T170000
DTSTAMP:20260418T045117
CREATED:20240509T184251Z
LAST-MODIFIED:20241003T133124Z
UID:51241-1728752400-1728752400@www.pwsausa.org
SUMMARY:Dance Silly for Prader-Willi
DESCRIPTION:Hosted by PWS Mom Michele Hampton \nJoin us for the inaugural Dance Silly for Prader-Willi event—a lively celebration to support the Prader-Willi Syndrome Association USA! This special occasion honors our daughter Jayda’s journey with PWS and the invaluable support we’ve received from this incredible organization. \nGet ready for a FUN\, FAMILY\, DANCE PARTY like no other! Set against the backdrop of Halloween—a season that poses unique challenges for children with PWS due to their dietary restrictions—this event aims to spotlight inclusivity and emphasize that holidays are about more than just treats. It’s all about creating joyous\, memorable experiences and cherishing time together. \nEvent Highlights: \n\nDance to the beats with our energetic DJ\nRock your favorite costume for a festive twist\nEnjoy exciting games and a creative craft station\nReceive a special kids’ basket for all registered families\nParticipate in kids and adult raffles for fabulous prizes\nSavor delicious dinner and snacks\n\nWhether you’re looking to sponsor\, donate a raffle basket\, or volunteer\, we would love your support. Reach out to us at mhampton0933@gmail.com to get involved. \nLet’s make this a night to remember as we Dance Silly for Prader-Willi!
URL:https://www.pwsausa.org/event/dance-silly-for-prader-willi/
LOCATION:Trumbull Career & Technical Center\, 528 Educational Hwy NW\, Warren\, OH\, 44483\, United States
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/05/dance-silly-poster_Melanie-McDonald.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241011T090000
DTEND;TZID=America/New_York:20241011T090000
DTSTAMP:20260418T045117
CREATED:20240605T205936Z
LAST-MODIFIED:20241003T132600Z
UID:51681-1728637200-1728637200@www.pwsausa.org
SUMMARY:No Gimmes for Jimmy Golf Tournament
DESCRIPTION:Join us for a day on the links on Friday\, October 11\, 2024\, at Rock Spring Golf Club in West Orange\, NJ in remembrance of Jim Worthington. A portion of the proceeds will be donated to the PWSA\, in Jim’s name. This event is inclusive for golfers and non-golfers alike – all skill levels are welcome. \nAbout the Event\nWhile he survived being directly under Tower 1 on 9/11\, Jim Worthington eventually lost his battle with leukemia on October 16\, 2021. He loved to play golf when he could get out — which was not often. He loved his family even more\, including his son with Prader-Willi Syndrome. \nPrader-Willi Syndrome (“PWS”) is rare and most people\, including many physicians\, caregivers\, as well as new parents and family members\, are not familiar with this syndrome. The symptoms are many and include a continuous urge to eat\, a need for fewer calories to maintain weight\, and cognitive development issues. Those impacted by PWS know there is far more to the syndrome than eating and weight gain and are often under incredible stress. For more information regarding PWS\, please visit: https://pwsausa.org/what-is-prader-willi-syndrome/. \nA “gimme” in golf is usually a short putt that is excused by one’s opponent for playing because it is considered too easy to miss. Jim was as generous on the golf course as he was in life\, and his wish was that any “gimmes” go to helping those individuals and families with PWS. \nWe started the No Gimmes for Jimmy Annual Charity Golf Outing to raise money and awareness for PWS while having some fun and remembering a great family man. \nJim didn’t get a “gimme” on October 16th\, but what he’d want just as much is for you to give to this remarkable charity. \nSo\, we’re asking you to contribute a “gimme” in Jim’s honor to PWSA and join us for a day of fun on the course in his honor.
URL:https://www.pwsausa.org/event/no-gimmes-for-jimmy-golf-tournament/
LOCATION:Rock Spring Golf Club\, 90 Rock Spring Rd\, West Orange\, NJ\, 07052\, United States
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/06/Hunter-Lens-Golf-Tournament-2024-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241005T120000
DTEND;TZID=America/New_York:20241005T120000
DTSTAMP:20260418T045117
CREATED:20240605T205522Z
LAST-MODIFIED:20241003T132634Z
UID:51678-1728129600-1728129600@www.pwsausa.org
SUMMARY:15th Annual Hunter Lens Golf Tournament
DESCRIPTION:Calling all New Englanders – Join the Lens family for a full afternoon of fun activities! \nThe 15th Annual Hunter Lens Golf Tournament will take place Saturday\, October 5\, 2024\, at 12:00 p.m. EST at the Back Nine Club (17 Heritage Hill Dr.\, Lakeville\, MA 02347). \nEnjoy time with family and friends while participating in golf\, a silent auction\, prize drawings\, and delicious dinner. Meet Hunter (26\, living with PWS)\, learn more about PWS and how PWSA | USA is working to help families across the U.S\, and enjoy a day on a beautiful course with great company! Register TODAY by visiting the Hunter Lens Golf Tournament registration page – CLICK HERE.
URL:https://www.pwsausa.org/event/15th-annual-hunter-lens-golf-tournament/
LOCATION:The Back Nine Club\, 17 Heritage Hill\, Lakeville\, MA\, 02347\, United States
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/06/Hunter-Lens-Golf-Tournament-2024.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240930T083000
DTEND;TZID=America/New_York:20240930T200000
DTSTAMP:20260418T045117
CREATED:20240712T151824Z
LAST-MODIFIED:20240712T151824Z
UID:52361-1727685000-1727726400@www.pwsausa.org
SUMMARY:The Inaugural RMC Foundation Golf Outing
DESCRIPTION:Tee off for a great cause at RMC’s annual golf tournament\, benefiting innovative research and community support initiatives. Enjoy a round of golf while making a positive impact on those living with Prader-Willi Syndrome. \nWhen: Monday\, September 30\, 2024\n8:30 a.m. shotgun start\nWhere: Ritz-Carlton Members Golf Club\nBradenton\, FL \nRegister TODAY at https://www.thermcfoundation.org/golf2024. \nThe RMC Foundation works to provide funding to PWSA | USA’s Advocacy Programs. These Programs help enrich the lives of people living with Prader-Willi Syndrome.
URL:https://www.pwsausa.org/event/the-inaugural-rmc-foundation-golf-outing/
LOCATION:Ritz-Carlton Members Golf Club\, 15150 70th Terrace E\,\, Bradenton\, FL\, 34202\, United States
CATEGORIES:Florida
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/07/Screenshot-2024-07-12-110836.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240911T170000
DTEND;TZID=America/New_York:20240911T180000
DTSTAMP:20260418T045117
CREATED:20240701T203617Z
LAST-MODIFIED:20240731T202437Z
UID:51987-1726074000-1726077600@www.pwsausa.org
SUMMARY:ECHO 4 PWS Webinar: Feeding and Swallowing
DESCRIPTION:Join PWSA | USA for our September ECHO 4 PWS Webinar\, Feeding and Swallowing with Roxann Diez Gross\, PhD\, CCC/SLP\, and Ann Scheimann\, MD\, MBA. This presentation is designed to enhance the knowledge of the assessment and management of the clinical features of PWS and increase the clinical knowledge of the management of feeding /swallowing issues using care based learning through a multi disciplined approach. \nREGISTER IN ADVANCE HERE \nPWSA | USA launched our Health Care Provider Project ECHO Series\, ECHO 4 PWS\, in 2023. We are proud to offer this opportunity to health care professionals who work with patients affected by Prader-Willi syndrome (PWS) and to be the first PWS organization to implement Project ECHO® in the United States. \n 
URL:https://www.pwsausa.org/event/echo-4-pws-webinar-feeding-and-swallowing/
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/07/ECHO-4-PWS-graphic-feeding.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240907T090000
DTEND;TZID=America/New_York:20240907T143000
DTSTAMP:20260418T045117
CREATED:20240719T140226Z
LAST-MODIFIED:20240731T203020Z
UID:52567-1725699600-1725719400@www.pwsausa.org
SUMMARY:1st Annual Gavin Gill Classic Golf Tournament: Driving for a Cure
DESCRIPTION:Calling all New Englanders:\nJoin the Gill Family for a full morning of fun activities! \nThe 1st Annual Gavin Gill Classic Golf Tournament – Driving for a Cure\, will take place on Saturday\, September 7\, 2024\, at 9:00 a.m. EST at North Hill Country Club (29 Merry Avenue\, Duxbury\, MA 02332). \nEnjoy time with family and friends while participating in golf\, a silent auction\, prize drawings\, and a delicious lunch. \nMeet Gavin (18\, living with PWS)\, learn more about PWS and how PWSA | USA is working to help families across the U.S.\, and enjoy a day on a beautiful golf course with great company! \nCLICK HERE TO REGISTER FOR AND/OR SPONSOR THE GAVIN GILL CLASSIC
URL:https://www.pwsausa.org/event/1st-annual-gavin-gill-classic-golf-tournament-driving-for-a-cure/
LOCATION:North Hill Country Club\, 29 Merry Avenue\, Duxbury\, MA\, 02332
CATEGORIES:Massachusetts
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/07/Gavin-Gill-Classic.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240818
DTEND;VALUE=DATE:20240821
DTSTAMP:20260418T045117
CREATED:20240426T193108Z
LAST-MODIFIED:20240426T193108Z
UID:50690-1723939200-1724198399@www.pwsausa.org
SUMMARY:PWSA | USA's Residential Providers Conference
DESCRIPTION:As residential providers and caregivers are integral to the health and well-being of those living with PWS\, it is critical they have access to the latest information. PWSA | USA’s 2024 Residential Providers Conference\, Empowerment Heroes: Reveal Your Superpowers\, will offer a variety of lectures and workshops in a collaborative space where professionals can exchange practice-driven knowledge and actively contribute their experiences. The conference will take place August 18-20\, 2024\, both virtually via ZOOM and in-person at the Kimpton Brice Hotel in Savannah\, GA. The goal of this event is to enhance the care provided to individuals and develop new methods of support on a range of topics like research\, relationships\, technology\, the role of therapies\, diagnostic instruments in behavior management\, autonomy\, aging\, and more. Whether you have daily or occasional involvement as a professional caregiver of people with PWS\, we invite you to join! \nCLICK HERE TO LEARN MORE AND REGISTER
URL:https://www.pwsausa.org/event/pwsa-usas-residential-providers-conference/
LOCATION:Kimpton Brice Hotel\, 601 E Bay St\, Savannah\, GA\, 31401\, United States
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/04/Residential-Providers-Conference-Save-the-Date-graphic-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240815T170000
DTEND;TZID=America/New_York:20240815T180000
DTSTAMP:20260418T045117
CREATED:20240701T203321Z
LAST-MODIFIED:20240731T202545Z
UID:51983-1723741200-1723744800@www.pwsausa.org
SUMMARY:ECHO 4 PWS Webinar: Cardiac Concerns
DESCRIPTION:Join PWSA | USA for our August ECHO 4 PWS Webinar\, Cardiac Concerns with Dr. James Loker. On August 15\, 2024\, at 5:00 p.m. EST\, Dr. Loker will discuss Cardiac disease\, which accounts for 16% of all deaths in PWS. He will share the unique features of PWS that may predispose them to cardiovascular problems. \nREGISTER IN ADVANCE HERE \nPWSA | USA launched our Health Care Provider Project ECHO Series\, ECHO 4 PWS\, in 2023. We are proud to offer this opportunity to health care professionals who work with patients affected by Prader-Willi syndrome (PWS) and to be the first PWS organization to implement Project ECHO® in the United States.
URL:https://www.pwsausa.org/event/echo-4-pws-webinar-cardiac-with-dr-james-loker/
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/07/ECHO-4-PWS-graphic-feeding-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240806T200000
DTEND;TZID=America/New_York:20240806T210000
DTSTAMP:20260418T045117
CREATED:20240702T155952Z
LAST-MODIFIED:20240702T155952Z
UID:52038-1722974400-1722978000@www.pwsausa.org
SUMMARY:PWS - Aging and Health Update Webinar Part 2
DESCRIPTION:REGISTER IN ADVANCE HERE \nPresenters: Barb Dorn\, RN BSN\, PWSA l USA Volunteer \nOverview:  This webinar will continue discussion on commonly reported health issues by sharing risk factors\, screening and monitoring tools as well as prevention and management strategies for additional health topics – respiratory issues\, weight gain/obesity\, low bone density\, cardiac issues (high BP\, elevated lipids\, swelling)\, mobility issues / spine deformities and worsening mental health (depression\, low energy and dementia). \nDate: Tuesday\, August 6\, 2024 \nTime: 7:00 pm CST / 8:00 pm EST \nObjectives: Attendees will be able to: \n\nShare risk factors\, screening and monitoring tools and prevention and management strategies for additional commonly reported health issues seen in aging adults with PWS.\nTopics to be covered:\n\nRespiratory Issues\nWeight Gain/obesity\nLow Bone Density\,\nCardiac Issues (high BP\, high lipids\, swelling)\nMobility issues / spine deformities\nWorsening mental health issues (depression\, low energy and dementia).
URL:https://www.pwsausa.org/event/pws-aging-and-health-update-webinar-part-2/
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/07/PWS-Aging-Webinar-Series.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240730T200000
DTEND;TZID=America/New_York:20240730T210000
DTSTAMP:20260418T045117
CREATED:20240702T155754Z
LAST-MODIFIED:20240702T155754Z
UID:52035-1722369600-1722373200@www.pwsausa.org
SUMMARY:PWS - Aging Research and Health Update Webinar Part I
DESCRIPTION:REGISTER IN ADVANCE HERE \nPresenters: Lynn Garrick\, RN\, MSN\, PWSA l USA Medical and Research Coordinator\, Barb Dorn\, RN BSN\, PWSA l USA Volunteer \nOverview:  This webinar will highlight current research in the area of aging and PWS.  It will also identify the most common health issues being reported by parents\, guardians and caregivers.  The speakers will then begin sharing risk factors\, screening and monitoring tools as well as prevention and management strategies for three of the most commonly reported health issues – dental issues\, choking /constipation\, and diabetes. \nDate: Tuesday\, July 30\, 2024 \nTime: 7 pm CST / 8 pm EST \nObjectives: Attendees will be able to: \n\nHighlight some of the current research in the area of aging and PWS\nShare results of Aging and Health Survey (Barb)\n\nIdentify most common health issues reported by parents\, guardians and caregivers.\n\n\nShare risk factors\, screening / monitoring tools and prevention / management strategies for 5 of the most commonly reported health issues.\nTopics to be covered:\n\nDental Concerns\nChoking\nGastroparesis\nConstipation\nDiabetes
URL:https://www.pwsausa.org/event/pws-aging-research-and-health-update-webinar-part-i/
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/07/PWS-Aging-Webinar-Series.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240513
DTEND;VALUE=DATE:20240516
DTSTAMP:20260418T045117
CREATED:20231030T180144Z
LAST-MODIFIED:20240412T154755Z
UID:45618-1715558400-1715817599@www.pwsausa.org
SUMMARY:2024 D.C. Fly-In
DESCRIPTION:150 PWS Advocates will descend on Capitol Hill during National PWS Awareness Day for PWSA | USA’s 2nd D.C. Fly-In!\nPWSA | USA is excited to announce that our 2nd D.C. Fly-In will take place May 13-15\, 2024\, and the event hotel will be YOTEL Washington DC | Capitol Hill Hotel (415 New Jersey Ave NW\, Washington\, DC 20001)! During the Fly-In\, we will learn about Policy affecting the PWS community\, hear from policy makers\, and continue our advocacy efforts by coming together on May 15th for a “Day on the Hill” to celebrate National PWS Awareness Day! We want to thank Aardvark Therapeutics\, Acadia Pharmaceuticals\, Harmony Biosciences\, and Soleno Therapeutics for funding this important event for our community. \nWe have reached our capacity for 2024 D.C. Fly-In applications. We are thrilled to see the overwhelming interest in this event and look forward to taking our advocacy efforts to Washington\, D.C. in May! Attendee selections have been made on a first-come\, first-served basis. Thank you all for your incredible enthusiasm and understanding! \nIf you have any questions\, please reach out to us at advocacy@pwsausa.org.
URL:https://www.pwsausa.org/event/2024-d-c-fly-in/
LOCATION:Washington\, D.C.
ATTACH;FMTTYPE=image/jpeg:https://www.pwsausa.org/wp-content/uploads/2024/01/email-announcement.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T110000
DTEND;TZID=America/New_York:20240420T140000
DTSTAMP:20260418T045117
CREATED:20240308T204026Z
LAST-MODIFIED:20240315T211204Z
UID:49222-1713610800-1713621600@www.pwsausa.org
SUMMARY:Ohio 5K & Family Fun Run
DESCRIPTION:When: Saturday\, April 20\, 2024 from 11:00am – 2:00pm EST\nWhere: Glacier Ridge Metro Park\, 9801 Hyland-Croy Rd\, Plain City\, Ohio 43064 \nRegister to ATTEND or SPONSOR the Hope United Ohio 5K & Family Fun Run in support of Prader-Willi kids like us! Proceeds from this event will benefit PWSA | USA’s Advocacy\, Family Support\, and Research programs. \nCLICK HERE TO REGISTER! \nThe Hope United Ohio 5K & Family Fun Run will include: \n\nFood\nVendors\nA 5K Run/Walk\nKids games\nKids’ run\nAnd more!\n\nIf you’re interested in participating in this event or sponsoring this event\, please complete the registration form below. We hope to see you there! \nWould you like to help other Ohio PWS families fundraise? Create your own event page HERE.
URL:https://www.pwsausa.org/event/ohio-5k-family-fun-run/
CATEGORIES:Ohio
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/03/Click-Here-to-Learn-More-About-BOSS-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240326T200000
DTEND;TZID=America/New_York:20240326T210000
DTSTAMP:20260418T045117
CREATED:20240305T153724Z
LAST-MODIFIED:20240305T153724Z
UID:49013-1711483200-1711486800@www.pwsausa.org
SUMMARY:Family Support Webinar: Psychosis in PWS - Early Signs\, Diagnosis\, and Treatment
DESCRIPTION:Join PWSA | USA and Elizabeth Roof\, MA\, HSP\, on Tuesday\, March 26th to learn more about Psychosis in PWS: Early Signs\, Diagnosis\, and Treatment. The webinar will begin at 5pm PST/ 8pm EST. Elizabeth Roof is a Senior Research Associate at Vanderbilt University Department of Psychology and has been licensed as a Health Service Provider in Tennessee since 1994. She currently directs several research programs with children and adults with Prader-Willi syndrome alongside Elisabeth Dykens. For over 30 years\, Elizabeth has followed longitudinally over 400 children\, teens\, and adults with PWS in research studies. She has a wealth of knowledge and experience with PWS and has valuable insights to offer in the realm of psychosis in PWS. Register for the webinar below. \nCLICK HERE TO REGISTER
URL:https://www.pwsausa.org/event/family-support-webinar-psychosis-in-pws-early-signs-diagnosis-and-treatment/
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/03/Tuesday-March-26-2024-5pm-PST-8pm-EST.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240323T180000
DTEND;TZID=America/New_York:20240323T230000
DTSTAMP:20260418T045117
CREATED:20240122T150633Z
LAST-MODIFIED:20240122T150633Z
UID:47354-1711216800-1711234800@www.pwsausa.org
SUMMARY:2024 Clint Hurdle Hot Stove Dinner
DESCRIPTION:2024 Clint Hurdle Hot Stove Dinner Tickets Now Available for Purchase!\nJoin hosts Clint and Karla Hurdle on Saturday\, March 23\, 2024\, on the beautiful grounds of Bradenton Country Club (4646 9th Ave W\, Bradenton\, FL 34209) in Bradenton\, FL\, and virtually from anywhere. Together\, we can create a brighter future through your continued support! \nHighlights of the evening: \n\nInspirational stories of what Prader-Willi Syndrome Association | USA does every day!\nSilent Auction: Bid on exclusive items and experiences\, with all proceeds going towards PWS research and support programs\nGourmet Dinner: Enjoy a delectable meal while mingling with fellow supporters and advocates\nLive Entertainment\nRaffle\nCoconut Drop | Golf Ball Drop!\n\nTo purchase tickets\, text the keyword Hotstove2024 to 76278 or go to hotstove2024.givesmart.com
URL:https://www.pwsausa.org/event/2024-clint-hurdle-hot-stove-dinner/
ATTACH;FMTTYPE=image/jpeg:https://www.pwsausa.org/wp-content/uploads/2024/01/Clint-Text-for-Ticket-Sales_Page_2.jpg
END:VEVENT
END:VCALENDAR